We did it!
August 01, 2017
This past March our son Eric was diagnosed with Langerhans Cell Histiocytosis. He has a large tumor in his jaw bone and 3 additional bone lesions throughout his body. Eric has had multiple surgeries, procedures, and tests. He is in his 3rd month of IV chemotherapy in addition to daily oral chemo. Despite all of this, he continues to amaze us on a daily basis. We are so proud of how far he has come!
Unfortunately, LCH is very rare; and there are other forms of histiocytosis that are even rarer. There is no funding for research on histiocytosis because of it's rarity. All of the research that has been done thus far, towards finding a cure and understanding this disease, has been privately funded by generous people like yourselves.
Together, we will run/walk to raise funds for ground-breaking research, to increase awareness of a disease that all too often goes misdiagnosed, and provide support to each other as we fight Histiocytosis.