Swimming for Moth - A 10k for ALS
Organized by: Marc Fullerton
5k Swim one day after TS Karl
September 27, 2016
"Middle Finger" announced Siri.
It came as a bit of a surprise to those that heard it but the glare from the person holding the ipad made the TV feel lucky that was all Siri was able to do. The Carolina Panthers had just scored to come within three points of the Denver Broncos in the Superbowl and Marilyn Dickinson was not happy.
Losing the ability to communicate is only one challenge that people living with ALS face. There are many, many battles not only for the person living with the disease but also for the families, caregivers and healthcare professionals that surround them. My mother in law Marilyn was diagnosed at 62 and was determined to meet all challenges head on, and live for as long as she could. If ALS was to be her journey she would need all of us, one husband, four kids, three sons in law and a daughter in law, six grandkids, amazing caregivers and the love and support of countless family members and friends to help.
Searching for resources and ideas to facilitate her undaunted spirit led us to Ron Hoffman and his organization Compassionate Care ALS in Massachusetts. Ron and his team were able to help us all in so many ways. He would listen to the obstacles we faced, and would recommend and send devices and tools to assist Marilyn in moving around with as much ease as possible. Ron was also able to help each of us find our own way on her journey, by being present in her moments, the practice of active listening, and sharing stories of how other families have coped. He helped Marilyn and our family ask the difficult questions ALS brings and to help us to just be there for her and each other.
Audrey Marilyn (Carthew) Dickinson passed away on July 27th, 2016 at the age of 65 at her home surrounded by her family. In her honor in October 2016 I will swim 10k around Harrington Sound to raise money so Ron and his team at CCALS can continue providing support for all people that ALS touches, their families and communities as they navigate the complexities, both physical and emotional, associated with the disease. All of Marilyn's equipment provided by the CCALS team has been donated and will reside in Bermuda to help other ALS patients on their journey. Help us to help others, as Marilyn did.
We thank you for your support and donation.
For more information about Ron Hoffman and Compassionate Care ALS, go to his website:
To read the Royal Gazette Articles about Marilyn please follow the links below:
To view the Dickinson Family Ice Bucket Challenges please follow the links below: