BENEFITING: The Sudden Arrhythmia Death Syndromes Foundation
EVENT DATE: Sep 30, 2016
SADS Foundation wrote -
The SADS Foundation is on a mission to eliminate sudden cardiac deaths due to inherited arrhythmias, and until we do we will campaign for awareness, deliver comprehensive support to affected families, expand knowledge within the health care community, and magnify the influence of patients and families on research.
With your financial support of exciting new initiatives and the comprehensive services of the SADS Foundation, you will be saving thousands of young lives and enriching life’s activities for affected individuals. You will be encouraging patient and family empowerment, medical education of cardiac and frontline health care professionals, and connections between researchers and patients for groundbreaking research studies which all lead to the most beneficial care and treatment of families with SADS conditions. Our commitment to you is to ensure mutually beneficial opportunities – where you have access to affected families, key physicians, researchers and opinion leaders in the fields of cardiology and electrophysiology.
Medical Seminars and Webinar: The SADS Foundation is regularly approached by academic centers, healthcare systems and practices to bring medical education to their facilities and faculty through on-site seminars or live-streaming webinars. The SADS Foundation has responded with a robust seminar series and webinar series that afford the means to not only support the SADS Foundation, but leading healthcare providers.
Family Seminars and Webinars: Regional family seminars are held several times a year bringing in local experts to interact with families in addition to live-streaming webinars for those who cannot travel from national experts about topics such as the following: New Perspectives for Patient Management, Research and Recent Advancements; Genetic Screening, Pharmaceutical Care, and ICD Therapy. Question and Answer Sessions are provided after presentations furthering the value of these events.
Disease-Specific Communities Resources: In order to individualize support, the SADS Foundation is bringing together families who share a specific condition under our umbrella. Staff and community members join forces as they seek to maximize resources and opportunities that will lead to improved family support, medical education and research for the community’s particular condition. Projects being undertaken at this time include disease-specific materials as well as closed blogs, interactive webpages, and facebook groups.
Awareness Materials: The SADS Foundation provides the most up-to-date information about SADS conditions for our families and physicians through a myriad of printed and online publications including: Brochures and Fact Sheets; Online Resources at www.StopSADS.org; Family Campaign Materials; Quarterly Emailed Literature Reviews; Monthly E-Newsletters; Semi-Annual Print Newsletters.