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Heather Alico's Fundraiser:

Chase for The Champ--Tar Heel 10 Miler

Heather's Photo
Heather's Photo

BENEFITING: The Champ Foundation

EVENT DATE: Apr 23, 2016

Heather Alico

THE STORY:

Pearson Syndrome (PS) is a multi-system disease caused by a deletion in mitochondrial DNA. The hallmark features are sideroblastic anemia and pancreatic insufficiency. PS is often fatal in infancy. In addition to the hematological and pancreatic symptoms, PS can impair the heart, kidneys, eyes, ears and brain. Survivors develop Kearns-Sayre Syndrome.

Since its discovery in 1979 by Howard Pearson, there have only been around 100 cases reported in the medical literature. PS is probably under-diagnosed, since few doctors are aware of the disease’s existence, much less its symptoms.

At just a few months old, William, The Champ, was diagnosed with Pearson Syndrome. William is incredibly sweet, smiley, curious and precious. We love watching Elizabeth & Jeff with William, he tracks Elizabeth wherever she moves and his face lights up at Jeff's goofy noises. They are selfless and loving parents who deserve all of the support in the world. Please consider learning more about Pearson Syndrome and The Champ Foundation. This organization has given their first grant for research toward a cure for PS and your efforts will continue to expand their efforts. They do a wonderful job with William's blog and send a newsletters to keep their donators informed.

I can't wait to run the Tar Heel 10 Miler in Chapel Hill on April 23rd 2016 and hope you can donate and/or join us for the race! Use this link to save $5 when you sign-up and the team will donate $5 back to The Champ Foundation for each teammate.  Select the social group called "The Champ Foundation" when registering.

 

DONATE

To This Fundraiser

$1,305

MONEY RAISED
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  • Bill and Laurie Alico

     

  • Kathryn

    $15

  • Kim and Frank Wrazen

     

  • Aunt Yahtzee and Uncle Paul

    $25

  • Deni and Victor Nesi

    $250

  • Dan

    $25

  • Andrew

     

  • Andrew

     

  • Nancy and Steve

    $50

  • The "other" Roder Family (Tim & Anne)

    $100

  • Kelsey

    $25

  • Sarah Nesi

    $10

  • Tomas Hoyos

     

  • Andrew + Marie Nesi

     

  • Renee Shah

    $50

  • Connor Wentzell

     

  • Jess Halpern

    $25

  • Ashlynn, Liz, Ty

     

  • Taylor Simmons

     

  • Katie Schiffler

    $25

  • Bree

    $25

  • Blake & Nick

    $25

  • Anonymous

     

  • Casey Beuler

    $25

  • Lindsey

     

  • Jen Brousseau

    $10

  • Megan Keenan

    $15

  • Rachel Maass

    $10

  • Kate Sullivan

    $10

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131% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $1,305 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Jackie Nesi

Amount Raised

$660

Fundraiser Title

Heather Alico

Amount Raised

$340

 

34% Raised of $1,000 Goal

Fundraiser Title

Allison Roder

Amount Raised

$305

 

122% Raised of $250 Goal

Donor Comments

Kate Sullivan

Kate Sullivan

DONATION: $10

2 years ago

Rachel Maass

Rachel Maass

DONATION: $10

2 years ago

Megan Keenan

Megan Keenan

DONATION: $15

2 years ago

Jen Brousseau

Jen Brousseau

DONATION: $10

2 years ago

Lindsey

Lindsey

2 years ago

Casey  Beuler

Casey Beuler

DONATION: $25

2 years ago

Anonymous

ANONYMOUS

2 years ago

Blake & Nick

Blake & Nick

DONATION: $25

2 years ago

Bree

Bree

DONATION: $25

Go Jackie Go 2 years ago

Katie Schiffler

Katie Schiffler

DONATION: $25

2 years ago