Running the NYC Marathon for our Superhero
Organized by: Chele Norrie
Chele Norrie via Crowdrise
November 10, 2014
EVENT DATE Nov 02, 2014
UPDATE as of Oct. 27, 2014. Taven is doing so well, his eye is healing from the radiation and he's currently able to see out of it. He is scheduled for his next surgery on Nov. 14, 2014. This fundraiser is almost over and the marathon is fast approaching! We will continue to keep everyone updated via Facebook. Thank you for all of your support.
I didn't know why I was running another marathon. Now, I do.
My 3 year old nephew, Taven Hansen, has been diagnosed with Retinoblastoma (eye cancer). The last few days have stopped our world.
After further tests, surgery and a MRI we are full of gratitude as the cancer has not spread to his brain or his optic nerve. The tumor is fully contained in his right eye.
Taven's doctors have highly recommended Brachytherapy (direct radiation to the tumor). By placing a gold plaque filled with radioactive isotopes into his eye--directly near the tumor, the radiation will begin to shrink the tumor. Only 2% of Retinoblastoma kiddos qualify for Brachytherapy.
Because the tumor is on the inside area of eye/pupil, the inner muscle (near the tear duct) will have to be cut to get the gold plaque in the right place/direction. The radiation is pointed outward stopping the radiation from getting to any other area of the body. The eye is sewn shut and a metal mesh is placed over his eye. This stays in place for 5 days and is then removed.
The Physicists need to prepare the isotopes therefore the procedure will take place (start) on Wednesday, Sept. 24. After the procedure the eye will heal for a month or longer, so there will be weekly appointments to monitor the progress of healing.
After the eye is fully healed Taven will start to go in for procedures (under anesthesia) even 3-4 weeks, where the doctor will determine how well the tumor is shrinking and may even do laser or cyro (freezing) therapy. This will continue for roughly 6 months until the tumor is gone. The goal is to have the tumor completely gone in 6 months. Thereafter, Taven will still have monthly checks (under anesthesia) to ensure the tumor is gone and no other problems have occurred.
The risks involved are 1) total loss of vision, most likely his vision will decrease some, 2) a cataract is a guarantee because radiation is known to speed up cataracts. The timing of this happening is unknown, it could be as little as a year or up to ten years. When this happens his lens will be replaced with an artificial lens. 3) The muscle that’s cut in his eye may not heal properly, so he would likely need surgery to loosen or tighten this muscle.
This is a lot to take in but we are so thankful the procedures can be completed here in Denver. There will be lots of driving for Taven and his family as they currently live up in the Mountains in Granby, CO.
All donations go directly to Taven and his family. Anything you can give is beyond appreciated. If you're unable to help financially, please consider sending Taven a letter or card to: PO Box 698, Granby CO 80446 USA
If we reach our 26.2 inspired goal ($2,620), Michael has offered Taven the chance to shave off his beard and the hair on his head. Additionally, due to Taven's treatment plan I've offered to wear an eye patch while I run in Taven's honor at this year's 2014 NYC Marathon on November 2.
Thank you for your support. Keep loving one another!
- Chele & Co.