BENEFITING: ALS Association Greater New York Chapter
Hi Everyone! This time last year I was in the midst of training for the NYC Marathon, I was anxious and excited. Being a part of this fantastic organization has been a blessing. I am honored to be able to represent Team ALS again in our fight to defeat ALS! A 24 hour Ragnar Race is nothing compared to the struggles a pALS and their families go through. I am a bit overwhelmed as so many memories flood to the forefront as every mile of training feels I am closer to her. I lost my Nanny: Arlene Coyle on January 22, 2012 after an excruciating battle only 11 months after diagnoses (this taking 7 months of symptoms) with this awful disease she was 69 years young. I wasn't prepared. Like a lot of people I didn't know what ALS was until it became personal. Everything Nanny was became almost like a chore for her. She was the type of person who did for everyone else first, she had this way of making everyone feel like family and had the most vibrant eyes that reached through to your soul. ALS took everything from her and it ripped me a part. It became my mission to be involved in as much as I can and that makes me feel closer to her. It saddens me to the core that she only knew my older son for only a short time and he never experienced all she made me feel when I was younger. Nanny never met my youngest but he knows her as his Nanny in Heaven. Always watching us from above. My hope and ultimate prayer is that no other grandchild, sister, daughter, mother, son, father etc. has to part with their loved one because ALS!