Watch my video!
April 10, 2017
DATE: April 1 through May 15, 2017
Benjamin Lou was born with a rare disease called Spinal Muscular Atrophy (SMA) week type I/II, a debilitating motor neuron disease with no cure. Children with Ben’s diagnosis usually die early due to respiratory issues.
Despite the challenges Ben faces he has accomplished some amazing things! At age 10, Ben attended AMC (American Mathematic Competition for 10th graders and below) and ranked in the 2nd percentile and in 2014, Ben competed in Beijing at the World Math Team Championship and won the only Gold medal!
In 2015, Ben was nominated as a Rare Champion of Hope for extraordinary effort as a Global Patient Ambassador for SMA by the Global Genes Organization, an organization for rare disease patients. Here is Ben's speech at the award ceremony: https://www.youtube.com/watch?v=Uf21TYVaON0&t=416s. He also sang the song "Titanium", accompanied by Kris Allen on the Guitar. Here is the link: https://www.youtube.com/watch?v=1wN-YQqBXsI
In 2017, Ben was qualified USA Math Olympiad (USAMO)! USAMO is the most prestigious and the most difficult math contest for high school students. There are more than 300,000 students attend in the initial round, then a couple of thousands in AIME (American Invitational Mathematics Examination), in the end only 280 students this year qualified USAMO (12 grade or below) and 208 students qualified USAJMO (10 grade or below) in the entire nation! It is especially hard for Ben as a middle school student to get into USAMO round. For more info, please refer to the link: https://en.wikipedia.org/wiki/United_States_of_America_Mathematical_Olympiad
Ben is determined to accomplish everything he sets his mind too, and continues to amaze all around him. Here is a video which highlights some of Ben's life: https://www.youtube.com/watch?v=ujv4zgLLZmE
Please support Ben’s team and join the Virtual Denim Dash today! Any amounts will help raise the awareness for our Rare Disease Community. Thank you for your support!
About Global Genes® (from https://globalgenes.org/who-we-are-2/)
Global Genes® is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®.
Rare diseases affect 1 in 10 Americans, 30 million people in the United States, and 350 million people globally. Over 7,000 distinct rare diseases exist and approximately 80 percent are caused by faulty genes. The National Institutes of Health estimates that 50% of people affected by rare diseases are children, making rare diseases one of the most deadly and debilitating for children worldwide.
The missions are to eliminate the challenge of rare diseases, to build awareness, to educate the global community, and to provide critical connections and resources that equip advocates to become activists for their disease.