Skip to content
christinagrub's profile image - click for profile

Christina Grub's Fundraiser:

Blair and Rory's Troop

Christina's Photo

BENEFITING: myFace

EVENT: Races for Faces 2017

EVENT DATE: Jul 23, 2017

Christina Grub

THE STORY:

 

Our family will be walking in the Races for Faces fundraiser on July 23, 2017, to raise awareness for children with craniofacial abnormalities.  Races for Faces is an annual fundraiser for MyFace.org.  My Face is an amazing organization that funds medical, surgical, dental, speech evaluation/therapy, and psychosocial services. They also provide local housing for families during treatment, family support groups and much more.

My niece Blair and son Rory were both born with craniofacial conditions.
Blair was diagnosed with soft cleft palate not long after birth.  A soft cleft palate is when the roof of the baby's mouth doesn't develop normally during pregnancy, leaving an opening or cleft in the palate that may go through to the nasal cavity.  This March marked 6 years since her surgery at NYU with Doctor Staffenberg.  She was just 9 months old when her surgery was performed. 

Rory was diagnosed at four months old with Metopic Craniosynostosis.  Craniosynostosis is a condition in which one or more of the sutures in an infant's skull prematurely fuses by turning into bone before birth. The metopic suture runs from the front soft spot through the forehead to the top of the nose. If left untreated, craniosynostosis can cause increased pressure on the brain, potentially leading to brain damage, vision and hearing loss.  July 7th will mark 7 months since Rory's CVR Surgery also performed by Doctor Staffenberg at NYU.  

We cannot thank NYU, Doctor Staffenberg and his staff enough for what they have done for our children.  We want to raise awareness and support this wonderful foundation that can help provide services for those who cannot afford the expense of a necessary and major surgery.

REGISTER

DONATE

To This Fundraiser

$1,250

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Grandma & Grandpa Grub

    $100

  • Osorio family

     

  • Debbie DiCarlo

    $25

  • Barbara DiCarlo

    $25

  • Barbara Moubray

    $25

  • Linda & David Johnson

    $50

  • Mandi loiacono

    $50

  • George Christodoulou

     

  • Donna Perinelli

    $25

  • Anonymous

    $25

  • Kelly & Dan

     

  • Maritza lack

    $25

  • Sal and Mandi Tamburello

    $50

  • Anne Musso

    $50

  • Nana n Poppa

    $100

  • Jamie Arahovites

     

  • Great Grandma DiCarlo

    $25

  • Jessica Caldara

    $50

  • Roseanne Burke

    $50

  • Linda Kelly-Rodriguez

    $25

  • Junie and Deedah

    $100

  • BethAnn and Mike Gagliano

     

  • Petra deHaan

    $25

  • Anonymous

    $25

  • Stasi family

    $25

  • Melissa Wills

     

  • Aunt Stina & Uncle Antny

     

  • Phyllis Cortese and Family

    $50

  • Love aunt Ronnie and uncle harry

    $25

  • Kathryn Morrissey

    $25

  •  
  •  
  •  
 

50% Raised of $2,500 Goal

The Team: $1,250 TOTAL RAISED SO FAR

Fundraiser Title

Christina Grub

Amount Raised

$625

 

25% Raised of $2,500 Goal

Fundraiser Title

Maritza Lack

Amount Raised

$575

Fundraiser Title

Rory Grub

Amount Raised

$50

Fundraiser Title

Paul Grub

Amount Raised

$0

Fundraiser Title

Kenneth Lack

Amount Raised

$0

Fundraiser Title

Debbie DiCarlo

Amount Raised

$0

Fundraiser Title

Barbara DiCarlo

Amount Raised

$0

Fundraiser Title

Margaret Grub

Amount Raised

$0

Donor Comments

Kathryn Morrissey

Kathryn Morrissey

DONATION: $25

13 hours ago

Love aunt Ronnie and uncle harry

Love aunt Ronnie and uncle harry

DONATION: $25

13 hours ago

Phyllis Cortese and Family

Phyllis Cortese and Family

DONATION: $50

Blair & Rory rock!! God Bless!! 13 hours ago

Aunt Stina & Uncle Antny

Aunt Stina & Uncle Antny

For Rory & BB 13 hours ago

Melissa Wills

Melissa Wills

14 hours ago

Stasi family

Stasi family

DONATION: $25

14 hours ago

Anonymous

ANONYMOUS

DONATION: $25

14 hours ago

Petra deHaan

Petra deHaan

DONATION: $25

The deHaan Family 15 hours ago

BethAnn and Mike Gagliano

BethAnn and Mike Gagliano

For Blair and Rory xo 15 hours ago

Junie and Deedah

Junie and Deedah

DONATION: $100

For Blair & Rory who have taught us how to be brave! 16 hours ago