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Margaret Grub's Fundraiser:

Blair and Rory's Troop

Margaret's Photo

BENEFITING: myFace

ORGANIZER: Christina

EVENT: Races for Faces 2017

EVENT DATE: Jul 23, 2017

Margaret Grub

THE STORY:

Christina Grub wrote -

 

Our family will be walking in the Races for Faces fundraiser on July 23, 2017, to raise awareness for children with craniofacial abnormalities.  Races for Faces is an annual fundraiser for MyFace.org.  My Face is an amazing organization that funds medical, surgical, dental, speech evaluation/therapy, and psychosocial services. They also provide local housing for families during treatment, family support groups and much more.

My niece Blair and son Rory were both born with craniofacial conditions.
Blair was diagnosed with soft cleft palate not long after birth.  A soft cleft palate is when the roof of the baby's mouth doesn't develop normally during pregnancy, leaving an opening or cleft in the palate that may go through to the nasal cavity.  This March marked 6 years since her surgery at NYU with Doctor Staffenberg.  She was just 9 months old when her surgery was performed. 

Rory was diagnosed at four months old with Metopic Craniosynostosis.  Craniosynostosis is a condition in which one or more of the sutures in an infant's skull prematurely fuses by turning into bone before birth. The metopic suture runs from the front soft spot through the forehead to the top of the nose. If left untreated, craniosynostosis can cause increased pressure on the brain, potentially leading to brain damage, vision and hearing loss.  July 7th will mark 7 months since Rory's CVR Surgery also performed by Doctor Staffenberg at NYU.  

We cannot thank NYU, Doctor Staffenberg and his staff enough for what they have done for our children.  We want to raise awareness and support this wonderful foundation that can help provide services for those who cannot afford the expense of a necessary and major surgery.

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To This Fundraiser

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MONEY RAISED
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The Team: $1,325 TOTAL RAISED SO FAR

Fundraiser Title

Christina Grub

Amount Raised

$675

 

27% Raised of $2,500 Goal

Fundraiser Title

Maritza Lack

Amount Raised

$575

Fundraiser Title

Rory Grub

Amount Raised

$75

Fundraiser Title

Paul Grub

Amount Raised

$0

Fundraiser Title

Kenneth Lack

Amount Raised

$0

Fundraiser Title

Debbie DiCarlo

Amount Raised

$0

Fundraiser Title

Barbara DiCarlo

Amount Raised

$0

Fundraiser Title

Margaret Grub

Amount Raised

$0

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