BENEFITING: Cornelia de Lange Syndrome Foundation, Inc.
ORGANIZER: Cornelia de Lange Syndrome Foundation, Inc.
EVENT DATE: Oct 15, 2016
Hi! My name is Micah. I'm 4 and have Cornelia de Lange Syndrome. I'm going to be running in my first race ever - the kids fun run at the Baltimore Running Festival - for Team CdLS! I may not be able to talk yet, but I do love to run (though I sometimes get a little distracted and overhelmed, so my parents are going to help ensure I make it to the finish line)! My little sister, Elisabeth, is also running with me and my big brother, Benjamin, and parents are running in the 5k! Please consider supporting me and my friends who also have CdLS by donating to the CdLS Foundation.
Cornelia de Lange Syndrome Foundation, Inc. wrote -
Inspired by individuals with Cornelia de Lange Syndrome (CdLS), Team CdLS runners take on the challenge to better the lives of people with the syndrome—many of whom struggle to talk, eat and walk. There is no cure for CdLS, but you can help ensure services and programs for families remain by supporting the CdLS Foundation—the only organization of its kind in the country. Thank you for joining us at the Baltimore Running Fest.