How am I feeling?
July 25, 2017
On Sunday, November 19th, I will be running the Philadelphia Marathon. It's my first marathon in over a decade, and it might be the one that it is the most meaningful. I am racing for my niece and goddaughter, 6 year old Callie Carr. Cal and I share the same birthday, December 23rd, and a devastating diagnosis. At the age of 40, with three young daughters, I learned that I had MS and that same year Cal was diagnosed with leukodystrophy. Leukodystrophy and MS are both white matter diseases, and in those five years Cal has lost the ability to walk, talk, and eat. She receives hospice care. Since my diagnosis, I have fought to regain a sort of balance and reclaim control of my body. With determination, hard work, and the support of my family, I have fought my way back and am in the best shape of my life. Last year, I ran a half marathon and crushed my $5,000 goal and raised over $6,000 for a to help kids with leukodsytrophy. This year I am doubling the distance and doubing my goal. These funds will support pioneering reseach that will cure Leukodystrophies in a decade.