Nearly 1 in 100 babies born in the United States are born with a Congenital Heart Defect. Emily was diagnosed with her Congenital Heart Defects (CHDs) in July of 2016. Since her diagnosis, she has undergone one open heart surgery to repair her Coarctation of Aorta. She also was diagnosed with bicupsid aortic stenosis, which is a heart valve that will most likely have to be replaced in her teenage years, and Hypertrophic Cardiomyopathy due to the fact she was not diagnosed until she was 8 1/2 years old. Kentucky Children's Hospital set our family up with Kerrington's Heart Inc., which is a support group for families of children with CHDs. Their mission is to provide education, encouragement and hope, while creating a network of support for the families and caregivers of children with heart disease. The organization offers comfort bags, certificates of bravery, educational support and financial assistance to families in need of meals, fuel and lodging. They also offer a variety of craft activities and hospital room decorations to further encourage the children during their stay at the hospital. “Heart to Heart” mom’s meetings are offered quarterly throughout Kentucky and provide an outlet for CHD mothers to connect with each other. By financially supporting research and development, they participate in work to fund the most promising research to advance the diagnosis, treatment and prevention of CHD. Kerrington's Heart is also a proud sponsor of the Beads of Courage program at the Kentucky Children’s Hospital. This program enables children to tell their story using colorful beads as meaningful symbols of courage that commemorate milestones they have achieved along their unique treatment path. Please consider donating to the Wild Heart's Fun Run and support Congenital Heart Defect research and help families like mine. Emily is 1 in 100.