BENEFITING: Cure JM Foundation
You can be a hero to a child with JM.
Each year, approximately 2 to 4 children in a million in the United States are diagnosed with Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM), the rare and life-threatening autoimmune diseases collectively known as Juvenile Myositis (JM). JM causes the body’s own immune system to attack healthy cells and tissues, which can cause pain, weakness, inability to walk and disfigurement. In some severe cases it can even be fatal. And there is no cure…YET.
And that’s where you come in.
On January 17th, 2016, families will be participating in the St. Pete Beach Classic to raise awareness of JM and raise funds for JM research. It’s all part of Cure JM’s 2016 National Educational Conference and Fundraiser, a multi-day event designed to help JM Families and Physicians connect while sharing the latest information in JM research and treatments.
Please consider making a gift now. Over 90% of each gift goes directly to Juvenile Myositis research and education programs, so your gift will bring us closer to a cure.
What could be more heroic?
Gary has been battling Juvenile Dermatomyositis for six years now. He was diagnosed at the age of two in May of 2009. Gary's JM or JDM has proven itself to be severe, complicated, and difficult to treat. As a result of of his JDM, he developed calcinosis a year and half into diagnoses despite aggressive treatment from the start. We have given Gary many drugs and therapies to keep him going on a road that will lead him to what we hope and pray for, good health. Last year proved to be the most difficult year yet. Gary suffered from calcium deposits that developed painful infection like wounds. We often had no choice but to check him into the hospital for pain management alone.
This year however, he is off to a great start. After adding a medication to help stop the particular process is body was in, he seems to be doing much better. Currently he is in physical therapy to regain some strength and stamina lost. His labs are mostly good and strength is even better. Gary also has a special doctor who has helped him deal with some of the medical and social situations he tends to struggle with in his eight year old mind. He still does infusions every two weeks. Takes his daily medications, and we try very hard to protect him from the sun.
Gary is our hero!
Our family would like to thank everyone for their amazing support over the past six years! We have been fundraising for six years now. The donations that have come in to the Cure JM Foundation of behalf of Gary blew our socks off! Thank you so much. I wish I could properly describe the faces that sweeping through my mind right now. It takes me back to that moment that donation came in. The number says so much more than "money". It means so much more. It says "I actually care about your son and you and your family, and the all the children that have suffered with JM." That is just so huge. We thank you so very much.