BENEFITING: Cure JM Foundation
EVENT DATE: Oct 15, 2017
In December 2016, our daughter Gracie was diagnosed with Juvenile Dermatomyositis (JDM). JDM is a very rare autoimmune disease, in which the immune system attacks blood vessel and muscle tissues in the body, most commonly causing muscle weakness and skin rashes. Gracie just turned 3 this past May, and has been on several treatments since December trying to get her disease into remission. Her symptoms have been improving, and we are very hopeful she will get to remission in time. Gracie is truly an inspiration to us, and our ultimate "brave girl"! We are doing a walk on October 15th to benefit the Cure JM Foundation, and raise awareness for this extrememly rare group of diseases. Juvenile Myositis only affects about 3 in one million children, so raising awareness is so important. Many pediatricians and general practicioners don't know the signs and symptoms because of it's rarity, which in many cases can delay diagnosis and treatments. The Cure JM foundation started in 2003 as a small fundraiser, and through nationwide grassroots funding, has raised over $11 million for JM research and education, and even established several JM research centers throughout the country. Their website is such a helpful resource for families dealing with this disease, and the book that they published is a wonderful guide as well. The treatments for this disease have come so far, and hopefully, some day, a cure will be found! Any amount that be donated will go to the Cure JM foundation, in hopes of doing just that! If you can't make a donation, maybe you can help by sharing. Thank you all so much for taking the time to read this.