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Team Grayson Kemp

Organized by: Jahnavi Dwight

Jahnavi's Photo
Jahnavi's Photo

THE STORY:

This Fund Raiser is for Bob and Jahnavi's wedding.  A gift for Jahnavi's sweet little nephew Grayson Kemp

How the Journey began February 2015: At Grayson's six-month wellness check he wasn't yet sitting independently and had no interest in starting solids. The pediatrician wanted to wait and see how Grayson was doing at his nine-month wellness appointment. At nine months, Grayson had started solids but he had trouble swallowing/gagging on medium to thick purees. He still wasn't sitting independently, so wasn't advancing to anything beyond that like crawling or pulling up. Plus, he didn't have much interest in toys or babble much, but we weren't terribly concerned because we remembered Logan taking a while to come around to toys and words. The pediatrician thought we should see how Grayson was doing at his twelve-month appointment. Mommy disagreed. After several months of much testing and traveling various medical facilities around the country On 6/4 we met with Grayson's pediatrician, who gave us the news that Grayson has been diagnosed with Tay Sachs disease. On 6/5 we met with his geneticist, who confirmed and tried to answer questions.

There is no cure for Tay Sachs and average life expectancy is 3 years of age. Grayson is now 2 and continues to grow physically as a normal 2 year old but is becoming less responsive as this disease slowly progresses.  All the help of friends and State agencies have been mustered and we invite you to lend a hand as a gift to our Love.

JAHNAVI and Bob

$1,000

 

67% Raised of $1,500 Goal

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  • Janis Baron

    $50

  • Wendy Wong, Austin Harper, Matt Traini

    $100

  • Karen & Larry Spies

    $100

  • David and Amalya Pomerantz

    $50

  • Judy & Kurt Bohren

    $100

  • Linda Manning

    $100

  • Sue DiPietro, Norman Strampach, and Michael and Raquel DiPietro

    $100

  • The Murray -Manning Family

     

  • Alys Holden and Lynda Montgomery

    $100

  • Geoff and Susan Barker

    $100

  • Hank and Jan Barker

    $100

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Organized by

Jahnavi Dwight

This is a direct to organizer fundraiser.

Donor Comments

Hank and Jan Barker

Hank and Jan Barker

DONATION: $100

As a tribute to your love. 1 year ago

Geoff and Susan Barker

Geoff and Susan Barker

DONATION: $100

In honor of your love. 1 year ago

Alys Holden and Lynda Montgomery

Alys Holden and Lynda Montgomery

DONATION: $100

In celebration of love on Jahnavi and Bob's wedding day. 1 year ago

The Murray -Manning Family

The Murray -Manning Family

In honor of Aunt Jahnavi and Uncle Bob's wedding 1 year ago

Sue DiPietro, Norman Strampach, and Michael and Raquel DiPietro

Sue DiPietro, Norman Strampach, and Michael and Raquel DiPietro

DONATION: $100

1 year ago

Linda Manning

Linda Manning

DONATION: $100

1 year ago

Judy & Kurt Bohren

Judy & Kurt Bohren

DONATION: $100

Blessings to you & lots of kisses. 1 year ago

David and Amalya Pomerantz

David and Amalya Pomerantz

DONATION: $50

Blessed wedding for Jahnavi and Bob 1 year ago

Karen & Larry Spies

Karen & Larry Spies

DONATION: $100

1 year ago

Wendy Wong,  Austin Harper, Matt Traini

Wendy Wong, Austin Harper, Matt Traini

DONATION: $100

1 year ago

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