Team Grayson Kemp
Organized by: Jahnavi Dwight
This Fund Raiser is for Bob and Jahnavi's wedding. A gift for Jahnavi's sweet little nephew Grayson Kemp
How the Journey began February 2015: At Grayson's six-month wellness check he wasn't yet sitting independently and had no interest in starting solids. The pediatrician wanted to wait and see how Grayson was doing at his nine-month wellness appointment. At nine months, Grayson had started solids but he had trouble swallowing/gagging on medium to thick purees. He still wasn't sitting independently, so wasn't advancing to anything beyond that like crawling or pulling up. Plus, he didn't have much interest in toys or babble much, but we weren't terribly concerned because we remembered Logan taking a while to come around to toys and words. The pediatrician thought we should see how Grayson was doing at his twelve-month appointment. Mommy disagreed. After several months of much testing and traveling various medical facilities around the country On 6/4 we met with Grayson's pediatrician, who gave us the news that Grayson has been diagnosed with Tay Sachs disease. On 6/5 we met with his geneticist, who confirmed and tried to answer questions.
There is no cure for Tay Sachs and average life expectancy is 3 years of age. Grayson is now 2 and continues to grow physically as a normal 2 year old but is becoming less responsive as this disease slowly progresses. All the help of friends and State agencies have been mustered and we invite you to lend a hand as a gift to our Love.
JAHNAVI and Bob