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Shanel Ortega's Fundraiser:

Team Ian's: MISSION FOR A CURE

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Shanel Ortega

THE STORY:

Our sweet boy Ian was recently diagnosed with GM1 Gangliosidosis, a rare and fatal genetic disorder that progressively destroys nerve cells in the brain and spinal cord. Mutations in the GLB1 gene cause GM1 Gangliosidosis. This gene provides special instructions for making a vital enzyme which plays a critical role in the brain. Without this enzyme, fatty substances accumulate to toxic levels in many tissues and organs, particularly the brain. This disorder is robbing children of their abilities, development, and their chance to live a normal life.

We are on the brink of finding a sure cure but we need your help to expedite the wait we will have to endure while money is being raised & trials are being tested. We cannot waste any more time waiting, this is a progressive disorder that generally gets worse over time. Many parents have lost their children to this, I cannot stress how REAL this is. We will not let this happen anymore! Let's get together and do what we can to bring the cure closer to our reach so that these little angels can progress and enjoy their lives. Every bit helps!!!

DONATE

To This Fundraiser

$1,315

MONEY RAISED
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  • Shanel Ortega

    $100

  • Michael Acevedo

    $100

  • Priscilla Lorenzo

    $100

  • Kazusa strucke

    $100

  • Anonymous

     

  • Astrid Martinez

    $50

  • Erika

    $25

  • Ruby Acevedo Fonseca

    $25

  • Mary Lopez Bosch

     

  • Kelly

    $20

  • The Arthur Family

    $20

  • Snjeza and Ceca

    $50

  • Spring Palser

    $50

  • Danielle

    $50

  • Millo

    $50

  • TAMMI AND EMMANUEL SUCCES

     

  • JASON TIRADO

    $100

  • Millie Ortega (Mima)

    $100

  • Jose Luis Ortega

    $100

  • Angel rodriguez

    $25

  • Lily Coll

    $25

  • Becky Sanchez

    $100

  • Maria Rodriguez

    $50

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26% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $1,315 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Maria Rodriguez

Maria Rodriguez

DONATION: $50

Keeping my handsome nephew and my family in my prayers he is a strong little man may God bless him and the family Shanel so proud of you stay strong love your. 1 year ago

Becky Sanchez

Becky Sanchez

DONATION: $100

I'm praying the Good Lord will multiply this money for you like he did in Matthew 14:13-21, but most of all for Him to provide a cure to Ian and all the other families affected my this rare genetic disorder. 1 year ago

Lily Coll

Lily Coll

DONATION: $25

1 year ago

Angel rodriguez

Angel rodriguez

DONATION: $25

1 year ago

Jose Luis Ortega

Jose Luis Ortega

DONATION: $100

Espero que esta donación ayuda para la cura de tu enfermedad. Eres mi tesoro; te amo. Espero que te mejores pronto. Abuelo, Papi Louie 1 year ago

Millie Ortega (Mima)

Millie Ortega (Mima)

DONATION: $100

To my loving angel, I hope that this helps towards a cure. I love you baby Ian, you will get better! God bless you. Always in my heart. Grandma Mima 1 year ago

JASON TIRADO

JASON TIRADO

DONATION: $100

I am so proud of your strength and dedication in your efforts to help your precious angel. I love you dearly and I hope this donation helps. I look forward to spreading the word more so we can meet this goal as quick as possible. Bless you and the family Shanel. 1 year ago

TAMMI AND EMMANUEL SUCCES

TAMMI AND EMMANUEL SUCCES

1 year ago

Millo

Millo

DONATION: $50

1 year ago

Danielle

Danielle

DONATION: $50

God bless you baby Ian! Faith runs strong and God will pull you through this 1 year ago