BENEFITING: Cure JM Foundation
EVENT DATE: Oct 15, 2017
In March of 2015, our daughter Jayleen Baptista, was diagnosed at Boston Children's Hospital with a rare autoimmune disease called Juvenile Dermatomyosistis (JDM). This disease affects only 2-4 kids out of 1-million children in the US per year. This rare disease is an uncommon inflammatory disease marked by muscle weakness and a distinct rash. At this time there is no cure but periods of remission when symptoms improve. The past 2 years have been an emotional rollercoaster. We didnt know what to expect with this disease or how her body would react to the medication. Jayleen is 8 years old and has gone through more than some people in a lifetime. Jayleen at 5 years old had a hard time doing day to day activites like eating and walking. I was feeling helpless and couldn't understand what was happening to her body. After visiting Childrens Hospital and getting a muscle biopsy i started to feel at ease because we were going to get answers. Well we did, after 2 years of her diagnosis i am proud to say that Jayleen is almost in remission. She will continue methotrexate for the rest of the year and will hopefully be completely off all medications. Please pray for Jayleen and other JM kids to continue their fight and to find a cure. Thank you to everyone who reads this and takes the next steps to donate to this much-needed and ever-important cause!