We are fundraising in memory of our daughter, Lindsey Rose Just, age 14, who passed away on Dec. 22, 2015 from HLH - Hemophagocytic Lymphohistiocytosis. Never heard of it? We hadn't either. We didn't know how devastating this disease is until Lindsey was diagnosed. And we sure couldn't have known it would kill her in less than 2 months.
As you can imagine, the grief is crushing. But out of that grief comes a fire ... A fire to educate others about this horrible disease. A passion to do whatever it takes to prevent another death from HLH. A desire to take our loss and turn it into something good, to give meaning to our pain.
Lindsey was our sunshine, and her short life touched so many people. By our joining the 5K to Fight Histio, we hope to spread her light much farther than she could have ever imagined.