christophertehan's profile image - click for profile

Christopher Tehan's Fundraiser:

TEAM NICO

Christopher's Photo
 

owner profile imageOfficial TEAM NICO t-shirt
September 02, 2017

There in the making and should be delivered to me by 9/12/17. Thank you to everyone who helped make it possible. T  See more
Christopher Tehan

THE STORY:

Hello everyone, we are the Tehan's and above is our very loving and amazing son Domenico (Nico). Nico was born with a rare brain condition named Dysgenesis of the Corpus Callosum(DoCC). DoCC is a condition in which the cerebral fibers of the center of the brain that allow the left and right hemispheres to communicate with each other have not fully grown or are completely absent.

Nico currently attends a special school that provides him with the needed services (speech, occupational & physical therapies) that are needed to live an everyday life. Nico was doing excellent in school until he started to experience a sudden onset of seizures. Because of this Nico was diagnosed with Complex Partial Epilepsy at 2 years old and continues to have multiple seizures on a monthly basis. Nico currently takes medication that attempts to control his seizures however, they are not very effective.

In March 2015, an MRI revealed a large Arachnoid Cyst in the center of Nico's brain almost completely blocking his third ventricle causing severe Hydrocephalus. This was overlooked during pregnancy and mis-diagnosed at birth. This cyst has been sitting on his frontal lobe and increasing in size at an extremely fast rate. Therefore, Nico underwent an emergency Left Frontal Craniectomy for Resection of Intraventricular Arachnoid Cyst and Titanium Cranioplasty. Nicos brain surgery was successful and we are very proud and happy to say that our little boy is now pain free and ready to learn again.

Nico continues to battle all types of Seizures on a now weekly basis. Unfortunately, medication does not help him and hopefully one day there will be a cure!! but untill that day, he will remain the fun, loveable little boy he has away been and we will continue to fight for him whether its ALONE! or with others..........#fuckepilepsy #epilepticwarrior #bigNEEKZ

DATE: SUNDAY, SEPTEMBER 24th

CHECK-IN BEGINS: 9:00 AM

WELCOME & RECOGNITIONS: 10:30 AM

WALK: 11:00 AM

$950

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Anonymous

    $25

  • Eddie and Leslie Mortensen

    $30

  • Mopar_Beauty & 3 Sons (1 battles with Epilepsy)

    $10

  • Team BT

    $500

  • Lisa Hammer & Family

    $50

  • Mike

    $25

  • John, Nikki, John, Vinny

     

  • Scott Annechiarico

    $100

  • The DiCicco's

    $100

  • STATEN ISLAND KAR KLUB

    $25

  • Renee Bien-Amie

    $25

  • Chubb Charitable Foundation

    $50

  •  
  •  
  •  
 

48% Raised of$2,000 Goal

The Team: $950 TOTAL RAISED SO FAR

Fundraiser Title

Christopher Tehan

Amount Raised

$925

 

46% Raised of$2,000 Goal

Fundraiser Title

Michael Matto

Amount Raised

$25

Donor Comments

Chubb Charitable Foundation

Chubb Charitable Foundation

DONATION: $50

1 year ago

Renee Bien-Amie

Renee Bien-Amie

DONATION: $25

2 years ago

STATEN ISLAND KAR KLUB

STATEN ISLAND KAR KLUB

DONATION: $25

2 years ago

The DiCicco's

The DiCicco's

DONATION: $100

2 years ago

Scott Annechiarico

Scott Annechiarico

DONATION: $100

Team Nico 2 years ago

John, Nikki, John, Vinny

John, Nikki, John, Vinny

TEAM NICO 2 years ago

Mike

Mike

DONATION: $25

2 years ago

Lisa Hammer & Family

Lisa Hammer & Family

DONATION: $50

God Bless! 2 years ago

Team BT

Team BT

DONATION: $500

2 years ago

Mopar_Beauty & 3 Sons (1 battles with Epilepsy)

Mopar_Beauty & 3 Sons (1 battles with Epilepsy)

DONATION: $10

I hope and pray that your little man's seizures decrease and be #seizurefree 🙏🏽 I feel your pain 2 years ago