Official TEAM NICO t-shirt
September 02, 2017
BENEFITING: Epilepsy Foundation of Metropolitan New York
EVENT DATE: Sep 24, 2017
Nico currently attends a special school that provides him with the needed services (speech, occupational & physical therapies) that are needed to live an everyday life. Nico was doing excellent in school until he started to experience a sudden onset of seizures. Because of this Nico was diagnosed with Complex Partial Epilepsy at 2 years old and continues to have multiple seizures on a monthly basis. Nico currently takes medication that attempts to control his seizures however, they are not very effective.
In March 2015, an MRI revealed a large Arachnoid Cyst in the center of Nico's brain almost completely blocking his third ventricle causing severe Hydrocephalus. This was overlooked during pregnancy and mis-diagnosed at birth. This cyst has been sitting on his frontal lobe and increasing in size at an extremely fast rate. Therefore, Nico underwent an emergency Left Frontal Craniectomy for Resection of Intraventricular Arachnoid Cyst and Titanium Cranioplasty. Nicos brain surgery was successful and we are very proud and happy to say that our little boy is now pain free and ready to learn again.
Nico continues to battle all types of Seizures on a now weekly basis. Unfortunately, medication does not help him and hopefully one day there will be a cure!! but untill that day, he will remain the fun, loveable little boy he has away been and we will continue to fight for him whether its ALONE! or with others..........#fuckepilepsy #epilepticwarrior #bigNEEKZ
DATE: SUNDAY, SEPTEMBER 24th
CHECK-IN BEGINS: 9:00 AM
WELCOME & RECOGNITIONS: 10:30 AM
WALK: 11:00 AM