Fox Valley Half Marathon
March 13, 2016
BENEFITING: The RYR-1 Foundation
My friend Kristen Spielman and I have been friends for more than 15 years. In 2008, her son Nathan was born with Multiminicore disease. This disease is caused by a mutation in the RYR1 gene. Nathan has gone through many different procedures and therapies during his short 7 year life, and now Nathan can walk without assistance but he is unable to run. That is why I am running the Fox Valley Half Marathon on September 18, on behalf of him. I am asking people to sponsor me by donating to the RYR1 foundation to help with research for treatments and a cure.