Thomas was born on May 21, 2011 a very healthy little boy. He hit all of his normal milestones until he reached the age of 15 months, when Trevis and I were very concerned that he was not walking and he was unable to stand on his own. Our pediatrician immediately sent us to Physical Therapy which did not have a significant impact. Our Physical Therapist suggested that we see a Neurologist as she felt that there was something more serious. Thomas went through various tests to try to figure out what was wrong, which took approximately 9 months until we received the devastating diagnosis of Metrachromatic Leukodystrophy (MLD). We were told to take him home and make him comfortable as there was no cure for this disease. We were devastated. This disease would eventually take Thomas' life and we knew we were on borrowed time. We made the best of the time that we had with Thomas and made many memories. Many family trips and lots of memories were made. On October 17, 2015, Thomas passed away surrounded by his family including, cousins, aunts, uncles and grandparents. We have vowed to continue Thomas' legacy to raise money to find a cure for these awful diseases. We were very fortunate to have found The Barnes' family and Chloe's Fight for Rare Disease Foundation. We all are doing what we can to find a cure for diseases like MLD. Please consider making a donation whether it be small or large to help find cures!!!