Laura Alberts wrote -The Alberts family is joining Chloe's Fight Foundation in finding a cure for rare diseases such as Metachromatic Leukodystrophy (MLD), which is what Thomas had. Thomas and Chloe both had MLD which is what brings our families together. Below is Thomas story: Thomas was born on May 21, 2011. He was a healthy 8 lb 15 oz boy without any issues. He hit all of his milestones right on time, similar to his sister and brother, Emily and Max. We started noticing issues when Thomas was not walking yet at 15 months as his siblings walked right at a year. Thomas was not even able to stand on his own. He walked with assistance and would take a few steps on his own, but none of his steps for very steady. We started doctoring and trying to figure out what was going on. We did PT and tests that the Neurologist ordered and everything came back negative. Thomas had his first MRI in March of 2013 and it did not show any abnormalities and everything looked normal. After all of these tests his neurologist sent us down to the Mayo Clinic in Rochester, MN to see if they could figure out what was going on. After an EMG, which showed delayed responses in the peripheral nerves, the doctor thought that he had CMT (Charcot Marie Tooth Syndrome), which is a genetic disease, so they did the blood work to verify the diagnosis. We got a call at the end of August of 2013 that the test came back negative. The Doctors did not know where to go as we saw a huge decline in Thomas ability to sit up on his own, rolling over on his own and the walking with assistance was almost completely gone. We were sent to the hospital to try an IVIG therapy as well as another MRI and EMG. The EMG had not changed from the previous one, but the MRI had changed quite a bit. The morning after the MRI, September 25, 2013, Thomas was diagnosed with MLD. We had no idea what this meant other than there was no cure and nothing we could do, but keep him comfortable and enjoy our time with him. We noticed that Thomas was eating less and having more difficulties with crawling and moving around as well as some pain. We then were introduced to the Minneapolis Children's Paliative Care Team who suggested that we get a feeding tube placed so that we could give him the appropriate nutrition as well as medicine to help with the pain he was having. We did everything they suggested as well as bring on a Pulminary and GI doctor. We contacted Make a Wish and got a trip to Walt Disney World set up in March of 2014. Thomas was in and out of the hospital in the winter and spring of 2014, until we received all of the machines at home, so that we could take care of him at home. Laura quit her job to come home and take care of Thomas and the other kids. After getting Thomas stable, we continued to live our lives to fullest and enjoy every moment we had with Thomas. We made lots of memories and made many trips around the area. Thomas even went to school and loved every minute of it. On October 17, 2015, Thomas passed away at home surrounded by all of his family including cousins, grandma and grandpa and aunts and uncles. Thomas was 4 years old and 4 months. We are on a mission to find a cure for these rare diseases so that no other family has to go through what we went through.