Organized by: Natalie Fisher
Updates on Vayda
September 11, 2016
Right before New Years of 2016, Britt and Mitchel found out that Britt was pregnant with Vayda Jo. They were overjoyed and could not wait to start planning for the new addition to their family. About twelve weeks into the pregnancy, Britt was told by her doctor that her baby had gastroschisis (Vayda’s abdominal wall had a defect and her intestines were being formed outside of her body). Her doctor told her that she would be having baby Vayda a few weeks earlier than the scheduled due-date because of her condition. The farther along the pregnancy got, the more complications Britt experienced. She was marked as high risk and was put on bed rest due to Vayda's fluctuating health state.
On August 9th 2016, Vayda Jo was brought into this world. Upon arrival she was immediately rushed into emergency surgery due to her condition being far worse than the doctors had originally predicted. Vayda had a far more severe and long-term form of gastroschisis along with having short bowel syndrome (a condition in which the body cannot absorb fluid and nutrients due to the small intestine missing). The majority of the small intestine that was being formed outside of Vayda’s body had died and they were not able to recover the organ. To date, Vayda has already undergone three surgeries (the first being the emergency surgery), she was put under again when she was two days old in order to have what remained of her small intestine attached to her colon and then the third surgery when she was eight days old to have a broviac line inserted. She recently made the journey to Chicago via ambulance to start a lifetime bowel rehabilitation program and as of right now can only be fed through simply stated IV’s. She will eventually be able to be fed through a gastric tube and that will continue for at least a year and then an eventual surgery that will hopefully provide Vayda with an intestinal transplant. Vayda will need lifelong follow-up care and will need to be closely monitored for any nutritional deficiencies or other complications. She is currently on TPN (total parenteral nutrition, which is nutrition fed intravenously). Vayda’s medical team will try to start drip feeding her milk through her gastric tube once she is able to have a bowel movement. There needs to be specific arrangements made before Britt and Mitchel will be able to bring Vayda home with them, such as learning how to feed her and specific care instructions due to her condition.
Britt and Mitchel are very confident in the abilities of the professionals who are working with Vayda to help her receive the best possible care. They are also very eager to have their baby home, since traveling hours to see their baby is incredibly stressful, while additionally worrying about the financial aspect of having a loved one in the hospital for an extended period of time and the additional care that will be needed for Vayda’s every-day living for an unforeseeable amount of time.
What this fundraiser will be aiding the family in:
•Medical Services and devices for Vayda Jo
•Support for Britt and Mitchel through the tough times ahead, including time off of work and also their living and traveling expenses.
•Every penny counts, if you can’t donate now, please help us spread the word by sharing this post/link on social media and being an advocate for Vayda Jo.
Prayers, as ever, are greatly appreciated!
Britt Burton, Mitchel Wright, and Natalie Fisher will have access to this account and will continue to provide you all with updates on Vayda’s condition and progress.
(We are choosing not to disclose Vayda’s location while in Chicago for safety reasons)