BENEFITING: Cure JM Foundation
EVENT DATE: Jan 15, 2016
You can be a hero to a child with JM. Each year, approximately 2 to 4 children in a million in the United States are diagnosed with Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM), the rare and life-threatening autoimmune diseases collectively known as Juvenile Myositis (JM). JM causes the body’s own immune system to attack healthy cells and tissues, which can cause pain, weakness, inability to walk and disfigurement. In some severe cases it can even be fatal. And there is no cure…YET. And that’s where you come in. On January 17th, 2016, families will be participating in the St. Pete Beach Classic to raise awareness of JM and raise funds for JM research. It’s all part of Cure JM’s 2016 National Educational Conference and Fundraiser, a multi-day event designed to help JM Families and Physicians connect while sharing the latest information in JM research and treatments. AJ and I will not be attending the Fundraising event in California but we will still support from Texas! Alena Jade (AJ) was DX with Juvenile Dermatomyositis in January 2011 at 19 months young. Her 5th year Battle-Versary is arriving on January 13, 2015 and we are hoping to raise funds in honor of her 5 years of bravely battling JDM. She is such a sweet, resilient and strong girl who continues to fight bravely again JDM, and with a smile! Please consider making a gift now. Over 90% of each gift goes directly to Juvenile Myositis research and education programs, so your gift will bring us closer to a cure. What could be more heroic? Learn more about the conference here or contact us at firstname.lastname@example.org or (760) 487-1079.