BENEFITING: Cure JM Foundation
You can be a hero to a child with JM.
You can also be a hero to my daughter, Alena Jade (AJ) Villalpando, DX with Juvenile Dermatomyositis at 19 months old, on January 13, 3011.
In Fall 2010, Alena began with JM symptoms, severe rash on face. She began having mobility problems and was becoming bedwritten in early January 2011. She could not eat without choking, she could no longer walk or run without falling, she could no longer rollover. Alena was admitted to Dell Children's Medical Center on Thursday, January 13th. She underwent a muscle biopsy confirming JDM and began intense IV treatment. Alena was released on Sunday. Since, Alena has spent most of her childhood in treatment, therapies, hospitals, doctor offices, in surgery and out of the SUN. She has spent a majority of her childhood on the sidelines.
Each year, approximately 2 to 4 children in a million in the United States are diagnosed with Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM), the rare and life-threatening autoimmune diseases collectively known as Juvenile Myositis (JM). JM causes the body’s own immune system to attack healthy cells and tissues, which can cause pain, weakness, inability to walk and disfigurement. In some severe cases it can even be fatal. And there is no cure…YET.
And that’s where you come in.
On January 17th, 2016, families will be participating in the St. Pete Beach Classic to raise awareness of JM and raise funds for JM research. It’s all part of Cure JM’s 2016 National Educational Conference and Fundraiser, a multi-day event designed to help JM Families and Physicians connect while sharing the latest information in JM research and treatments.
Please consider making a gift now. Over 90% of each gift goes directly to Juvenile Myositis research and education programs, so your gift will bring us closer to a cure.
What could be more heroic?