The ALS Association Greater Chicago Chapter via Crowdrise
September 27, 2012
BENEFITING: The ALS Association Greater Chicago Chapter
WILL YOU RUN TO DEFEAT ALS?
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Connect with us on Facebook- http://facebook.com/ALSAChicago
Visit the ALS Association Greater Chicago Chapter website- http://www.alsachicago.org
About the ALS Association
Established in 1985, The ALS Association is the only national non-profit organization fighting Lou Gehrig’s Disease on every front. By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure.
As the preeminent ALS organization, The Association leads the way in research, care services, public education, and public policy — giving help and hope to those facing the disease. The Association’s nationwide network of chapters provides comprehensive patient services and support to the ALS community. The mission of The ALS Association is to lead the fight to treat and cure ALS through global research and nationwide advocacy, while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.
When you support our organization, you are directly helping us advocate and invest in hope through funding research, as well as provide Care Services that enhance the quality of life for ALS patients and their families.
Our Care Services Programs include:
- Loan of essential medical equipment to improve mobility, communication and a sense of independence
- Support groups that create opportunities for patients and families to receive guidance and build relationships
- Transportation in specially-equipped vehicles, allowing patients to travel to ALS Clinics
- Education Materials to guide our patients, families and communities alongside their journeys
- In-Services in the community to care providers and other interested parties
- Home Visits by professional staff members providing different types of support
- University of Chicago Medical Center ALS Clinic Bi-Monthly: Dr. Raymond Roos, Medical Director
- University of Illinois Medical Center ALS Multi-Disciplinary Clinic: Dr. Julie Rowin, Medical Director
Facts about ALS
Amyotrophic lateral sclerosis (ALS), more commonly referred to as Lou Gehrig’s disease, is a progressive neurodegenerative disease that attacks nerve cells and pathways in the brain and spinal cord. When these cells die, voluntary muscle control and movement dies with them. Patients in the later stages of the disease are totally paralyzed, yet in most cases, their minds remain sharp and alert.
Presently, ALS knows no cure. Every 90 minutes, someone is newly diagnosed with ALS and every 90 minutes, someone precious loses their battle to the disease.
The average life expectancy of a person with ALS is two to five years from time of diagnosis. With recent advances in research and improved medical care, many patients are living longer, more productive lives. Half of all those affected live at least three years or more after diagnosis. About 20 percent live five years or more, and up to ten percent will survive more than ten years.
ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries. ALS can strike anyone. Every single one of us is threatened by this disease. Veterans and individuals who have suffered severe head trauma or played highly competitive contact sports are reportedly twice as likely to be diagnosed with ALS later in life. Former Saints player Steve Gleason is battling the disease, and a medical study suggests that head trauma sustained during his NFL career might be a cause.
- People with ALS and their families come first in everything we do.
- Scientific credibility and innovation are the hallmarks of our research program.
- Commitment to excellence and professionalism are key tenets at all levels of our organization.
- We are one team with one vision and one mission working together.
- Collaboration and partnership within our organization and with others who share our vision and values are key to sustained success in the fight against ALS.
- Integrity, honesty and ethical behavior guide all our endeavors.
- Mutual respect is the cornerstone for all our working relationships.
- Diversity of ideas, cultures, ethnicities and backgrounds strengthen our efforts.
- Financial strength enables us to accomplish our goals.
Thank you for joining in the Fight against Lou Gehrig's Disease!