BENEFITING: The ALS Association Massachusetts Chapter
ORGANIZER: The ALS Association Massachusetts Chapter
EVENT: 2013 Boston Marathon
EVENT DATE: Apr 15, 2013
I am running the Boston Marathon and my very first marathon in memory of my father. I am excited to be given this opportunity to be a part of Team ALSMA and will be especially motivated knowing that it will benefit such a worthy cause.
As many of you may know, this is a personal cause for me. My father was diagnosed with ALS in 2005 and he courageously fought this disease while simultaneously working full-time and coaching his sports teams. Within a year of diagnosis, he became dependent on his Dynavox for communication (a speech generating device) and a feeding tube for nourishment.
Then in 2007, my father had his first bout of Pneumonia and spent 3 months in ICU and then later was transferred to a rehabilitation center. He came home with vent and trach in place. At this point, he had no mobility in his upper body and his speech was gone.
Throughout the challenges and trials of this disease, my father never gave up. A born optimist until the day he passed, December 23, 2008. He is remembered for his courage, humor and his drive to raise awareness for ALS. I am proud to follow in his footsteps and continue to raise awareness for this cruel and devastating disease.
One day we will have this beat but until then I will continue to support this very important cause. Thank you for your support! I hope to see you all at the finish line!!
Amyotrophic Lateral Sclerosis Association wrote -
Team ALSMA is a dedicated group of Boston Marathon runners who are raising awareness and funds to benefit the cutting-edge research, vital patient care programs and important advocacy work of the ALS Assn. MA Chapter. Each team member has a relationship to a patient who has battled or is battling this disease. They run because they can! Amyotrophic Lateral Sclerosis (ALS) is a progrssive, fatal, neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2-5 years from the time of diagnosis. Every 90 minutes, someone is diagnosed with ALS and every 90 minutes someone will lose their battle with this disease. Please support a member of Team ALSMA!
Thanks and comeout and cheers our runners on Marathon Monday!