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United for a Cure's Fundraiser:

United for a Cure

United for a Cure's Photo
United for a Cure's Photo
United for a Cure's Photo
United for a Cure's Photo

BENEFITING: Rett Syndrome Research Trust

EVENT: TEAM EVA

EVENT DATE: Oct 20, 2013

United for a Cure

THE STORY:

Rett Syndrome is the most physically disabling of the autism spectrum disorders, primarily affecting girls, and usually strikes by 18 months of age.  It is caused by mutations on the X chromosome on a gene.  As the cascade of Rett Symptoms descends, a child loses acquired skills, normal movement and speech, then begins the long regression that may leave her in a wheelchair, unable to communicate or use her hands.  Extreme anxiety, Parkinson-like tremors, seizures and orthopedic problems are common.

Imagine having a beautiful, healthy daughter who is achieving all of the milestones for her age and then those milestones slowly disappear.  She no longer plays with her favorite toy, she no longer runs around in the back yard the way she used to, and she can no longer tell you she loves you.

Eva is a precious, sweet little girl who has Rett Syndrome.  We will be running in the Hambletonian Marathon in honor of Eva.  All the training that we will do to prepare for this marathon pales in comparison to the struggles that our little friend Eva and other little girls with Rett Syndrome will go through every day.  Please help us contribute in the much needed research for Rett Syndrome and find a cure.

$1,050

MONEY RAISED
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  • PINE BUSH EQUIPMENT

    $250

  • STEVE AND DEBBIE BONIFACE

    $100

  • Kristina Bell

    $50

  • Donna Boniface

    $50

  • Sandra Toombs-Parisi

    $10

  • The Trojahn Family

    $50

  • Erik Richards

    $25

  • Jim and Marie Barnett

    $50

  • Kumparatana Family

    $100

  • Amy Sicuro

    $20

  • Danielle Mazzella

    $10

  • Joy Zhu

     

  • Bridgette and Joseph Pesola

    $25

  • Taylor & Jimmy Barnett

    $75

  • Ken's Logging, Landclearing & Firewood, Inc./ Ken and Debbie Boniface

    $100

  • Alexis Trojahn

    $50

  • Tammy Eddy

    $10

  • Terry Family

    $25

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21% Raised of $5,000 Goal

The Team: $1,050 TOTAL RAISED SO FAR

Fundraiser Title

United for a Cure

Amount Raised

$1,050

 

21% Raised of $5,000 Goal

Donor Comments

Terry Family

Terry Family

DONATION: $25

4 years ago

Tammy Eddy

Tammy Eddy

DONATION: $10

4 years ago

Alexis Trojahn

Alexis Trojahn

DONATION: $50

This is from a fundraiser I did for you. Good luck Aunt P!!! 4 years ago

Ken's Logging, Landclearing & Firewood, Inc./ Ken and Debbie Boniface

Ken's Logging, Landclearing & Firewood, Inc./ Ken and Debbie Boniface

DONATION: $100

Our prayers are with the Fini family and others with loved ones who suffer with Retts syndrome. We pray that there will one day be a cure. <3 4 years ago

Taylor & Jimmy Barnett

Taylor & Jimmy Barnett

DONATION: $75

4 years ago

Bridgette and Joseph Pesola

Bridgette and Joseph Pesola

DONATION: $25

4 years ago

Joy Zhu

Joy Zhu

Good luck with the relay marathon! 4 years ago

Danielle Mazzella

Danielle Mazzella

DONATION: $10

4 years ago

Amy Sicuro

Amy Sicuro

DONATION: $20

4 years ago

Kumparatana Family

Kumparatana Family

DONATION: $100

4 years ago