On October 20th, I will be running in the Good Time Trotters Relay in Goshen, NY. I am running as part of the 3-person relay team, Team Girl Power. We will run a total of 26.2 miles. Team Girl Power runners are Shawna Mundy (11.5 miles), Kelsie Bryant (9.8 miles) and Kristen Bartlett (4.9 miles). We are running in honor of Eva Fini who is diagnosed with Rett Syndrome. Eva is the daughter of our good friends Aimee and Albert Fini. We are asking for your help to raise money for research in finding a cure for Eva and for all the little girls that are affected with this disease. Thank you for all your support!!!
Rett Syndrome is the most physically disabling of the autism spectrum disorders. Primarily affecting little girls, it usually strikes by 18 months of age, and leaves its victims severely disabled. Most children with Rett are unable to talk, walk or use their hands. Extreme anxiety, Parkinson-like tremors, intractable seizures and orthopedic problems are common. Many children live to adulthood, requiring total, 24-hour-a-day care. Recently the symptoms of Rett Syndrome have been reversed in pre-clinical models. This achievement has established a new paradigm for 21st century medicine and the treatment of Rett Syndrome.