On November 20, 2010, my husband and I brought our younger daughter into the world at BIDMC. Marin was three days late--a healthy 8 pounds 10 ounces--and was a seemingly perfect little baby. It appeared to be a routine pregnancy and delivery until Marin was diagnosed with hemolytic disease of the newborn hours after her birth. She was rushed to the NICU where she spent the next five excruciating days. At first we were not able to hold her, but within 24 hours of her being admitted, we were finally able to hold Marin for brief periods under the bili lights while she wore goggles. For the next five days, we lived in four-hour increments, hoping her bilirubin levels had stabilized. Unfortunately, her levels continued to rise so she became a candidate for blood transfusions and exchange transfusions. The neonatologists and my obstetrician were compassionate and patient with us as they tried to explain what was happening to Marin; their support and knowledge were what got us through those difficult days.
While Marin was being treated, social workers, lactation consultants who specialize in NICU babies and pediatricians from Harvard Vanguard also came to see us. The communication between the hospital and our family pediatrician in Wellesley was seamless; this was especially incredible given her condition was changing hourly.
After Marin’s release from the NICU, her struggles continued. Marin spent the better part of the next four weeks in and out of our pediatrician’s office and the Hematology department of Boston Children’s Hospital. The NICU doctors never wavered in their support--they continued to offer us advice and guidance even after Marin was discharged.
Marin is now a happy, healthy four-year-old girl, thanks to the efforts of the staff at BIDMC, who realized she was in danger hours after her birth. We will always remember the nurses, social workers, pediatricians, and neonatologists (especially Heather Burris and John Zupancic!) who helped us during our stay, and who continued to support us through our time at Children’s Hospital. (And I am forever indebted to BIDMC who let me sleep in a glorified closet until Marin's release!)
On April 20th, I will be running 26.2 miles for Team BIDMC, thinking of my two girls every step of the way. I am hopeful that through the marathon training and fundraising, my husband and I can move forward from our experience and offer support to another family in need.
Thank you for considering a donation to such an incredible hospital.