Team BIDMC is running to support Kidney Disease Research, Bowdoin Street Health Center, The Cancer Center, and the Annual Fund. Several of our runners are also supporting our Needham and Milton affiliates. Thank you for your support!
Running a marathon is an individual effort. Each pounding step against the concrete, each beat in your chest is your own. If it wasn't for your own effort, there wouldn't be a medal collected at the end of the 26.2 arduous miles. But, I learned long ago that running has very little to do with pounding your feet against the pavement or listening to heart jumping out of your chest, it's a mental game. A game that sometimes isn't fun at all. Sometimes, it's complete torture. Living for each step but knowing that you're one step closer to completion. On December 13, 2013, I entered a different type of mental game. My wife of four years came down with a sudden illness. An illness that required a medically induced coma for 6 weeks and a stay in the ICU for a total of 8 weeks. She would spend another 2 weeks on a neurology floor in the Farr building and then transferred to a rehab facility for 7 weeks. Here we are 10 months later. My wife is home and fighting hard. It's a slow road to recovery, but we are grateful for every lesson learned along the way. She's fighting hard to return to being a runner, a Zumba instructor, a best friend, a daughter, a sister, a wife, but mostly returning to being a mom. In the matter of one night in December, our entire life was changed, but we don't like to let anything hold us down. Running and writing are my outlets. I will be running the 2015 Boston Marathon on "Team BIDMC Tread Strong". It's honestly a team that I could not be more proud to represent. Our team is running to support Kidney Disease Research, Bowdoin Street Health Center, The Cancer Center, and the Annual Fund. Please help me reach my goal and join me in thanking all of the extraordinary human beings at Beth Israel Deaconess Medical Center for doing all they have done for my wife and our family. Thank you!
This is an excerpt from my blog that I wrote during this whole journey. I think it really exemplifies the team at Beth Israel.
"A body is made up of many parts, and each of them has its own use. That's how it is with us. There are many of us, but we each are part of the body of Christ, as well as part of one another. (Romans 12:4, 5 CEVDCUS06)
At approximately 9am every morning a team of doctors meets right outside Gloria's room. They discuss the previous day's events. The list of data and detail is super long, but after spending the entire day here, I feel like I could give the report. Trying to digest as much of the medical lingo as I can, I try to engage in conversation and ask pertinent questions. Most of which are derived from the numerous articles that I educate myself with over the course of the day. After two weeks, my mother-in-law and I consider ourselves an integral part of this care team.
The care team comes into the room after the previous day's discussion and does an overall check. Another quick meeting is held to discuss the current care plan. This morning was a little different though. This morning, there was a new attending on call. He seemed to be a bit more meticulous and thorough in the checkup and current care plan list. He went on to talk about the skill and expertise of the epileptic neurology team. And, they are experts. Extremely knowledgable. They study her EEG on a consistent basis advising medication as needed. The ICU attending even commented that this is truly the best place to be in the country with these symptoms. He ended the meeting with, "It's still early." That's the first time I heard that. "It's still early." You know what it is still early. It's only two weeks in. And, although living every moment for a two week period seems like two months, it really is only two weeks. Each member of this team here at Beth Israel is essential to Gloria's treatment. Each one of them has a crucial role in her care, including her mom and her husband. Thank God for the wisdom and professionalism that this has to continue to care for her each day.
Gloria's condition has varied over the last 24 hours but remains stable. The pentobarbital rate has been increased. Not because she's having seizures, but because there is suspicious activity on the EEG. She started a ketogenic diet today. The brief summary before you "google it": she's on a high fat, high protein, NO sugar diet to trick the brain into thinking that the body is starving. The thought here is that the body goes into ketosis. It will produce ketones replacing glucose in the brain as the energy source. This process has shown to reduce seizures naturally when the brain is in an epileptic state.
It truly takes a team to work together.