BENEFITING: BRAIN TUMOR FOUNDATION
ORGANIZER: BRAIN TUMOR FOUNDATION
ABOUT CARLY GRACE NELSON:
In September, 2008 when Carly was 8 months old, she was diagnosed with craniopharyngioma - a brain tumor which required a surgical removal procedure less than a month after its discovery. The surgery removed most of the tumor. Following that procedure, Carly needed to have a shunt inserted in order to regulate the fluid that was causing swelling and unexpected pressure on her barin. Since then she has undergone eighteen shunt replacement surgeries in order to address issues that continue to arise. And most recently at the age of 3, an MRI showed the return of a recurrent tumor for which she was treated with a Gamma-Knife procedure (a type of sterotactic radiosurgery) in early June. Though she has faced many obstacles on her road to recovery, Carly has inspired many, including me, with her strength, resilience and adorable little smiles. I've learned that she is a fighter and that her parents also inspire everyone those around them to help with her recovery.
I'm 3000 miles away and have not met Carly or her parents Brad and Christa. But through my friend Keith, I've learned that they meet every challenge faced by Carly with an unwavering commitment to do whatever is in her best interest - whether it's research or doctor meetings, or staying up all night rubbing Carly's back. Just thinking about what they are going through makes my heart ache. But their stength and hope, the courage that they exhbit daily, inspires me to be a better father, husband and human being. I am honored to support them in any way I can. You can read more about Carly here:
Every time there is a new update on Carly's health and treatments, it's due to the growing options available through modern science and technology. Every treatment, every alternative, every procedure and medication is the result of research and provides hope and relief for patients like Carly and for family-members. I am excited to train, run and raise money for more of this wonderful organization because I see now how valuable and necessary early detection and research are.
ABOUT THE BRAIN TUMOR FOUNDATION
The Brain Tumor Foundation (BTF) guides and supports patients and families during the turbulent times when their lives are touched by a brain tumor. The Road to Early Detection campaign, an initiative of BTF, was launched to increase public awareness about early screening for brain tumors and the urgent need for preventative brain scans. With BTF's Bobby Murcer Mobile MRI Unit, free brain scans are offered throughout the five boroughs of New York City. To date, early detection and complete removal is the best known method of treating deadly tumor growth.
Funds raised will go directly to The Road to Early Detection campaign.
EARLY DETECTION + RESEARCH = CURE