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Jake Phillips' Fundraiser:

Buns and Guns

Jake's Photo


EVENT: iCan for INAD

Jake Phillips


I am fundraising on behalf of a little five year old boy name Jake Phillips , who lives in Kerrville. Jake has a very rare disease called Infantile Neuroaxonal Dystrophy, and we are trying to raise money to fund a researcher.

Up until a year old, Jake seemed very normal and met all milestones. Then, around 15 months, he slowly lost his ability to walk, talk, crawl, sit, and see. Children with this disease can also lose their ability to eat and smile. They have an early life span, some die as early as 3, others can live a little longer with exceptional care. Jake was the 10th child in the US to be diagnosed at the time.

Our crossfit community is having a fundraising event on January 31st, 2015 to fund money for research, raise awareness for Jake’s rare disease, and encourage people in our community to have an active and healthy lifestyle.

I think it is easy for us to fall into the mindset of "I'm just one person and this disease is so big, how can I make a difference?" Donate. Give. Pray. All of it matters. Imagine if each person in the United States gave a little bit whether it was their money or resources or time to say a quick prayer for those battling diseases.



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