BENEFITING: EB Research Partnership
ORGANIZER: EB Research Partnership
EVENT: Jerusalem Marathon
EVENT DATE: Mar 01, 2013
this year i have decided to train and run a 10k race.
i have already run a 10k about 2 times in training and i ran my first race will be in Tibreias on January 10.
I am going to run the Jerusalem 10k and raise money for Team Butterfly. (EB). Team Butterfly was created to benefit the Jackson Gabriel Silver Foundation, an organization committed to finding a cure for Epidermolysis Bullosa (EB). EB is an extremely rare, painful, and life threatening skin disease that causes blistering throughout the body. For more information, look at the end of the email or click here .
My goal is to raise $600 for this.
I would really like it if you could help me . To donate please click big DONATE button at the bottom of the email.
Thanks very much
The team was founded by David Beiss, an 18 year old Yeshiva student who has battled EB his entire life. David created Team Butterfly in order to help raise much needed funds to help progress the promising research being done to find a cure for EB. EB affects about 25,000 people in the United States. Many people who have been diagnosed with EB do not make it past their early childhood. Last year, in our inaugural run, we had close to 50 runners in the Jerusalem Marathon, Half-Marathon, and 10k and raised almost $50,000 towards research! This year we are aiming to double our previous totals. With your help David, as well as other people affected by EB, can grow up to live full and pain-free lives!