BENEFITING: Cornelia de Lange Syndrome Foundation, Inc.
ORGANIZER: Cornelia de Lange Syndrome Foundation, Inc.
EVENT DATE: Sep 20, 2015
This is my 2nd year running with Team CdLS at the Saratoga Palio 5k and Half Marathon. These dedicated group of runners raise money for the CdLS Foundation (Cornelia deLange Syndrome)
Here is a little background... my great friends' Tera and Jessica cousin, Will, was diagnosed at birth with CdLS. Cornelia de Lange Syndrome (CdLS) is a genetic disorder present from birth, but not always diagnosed at birth. It causes a range of physical, cognitive and medical challenges and affects both genders equally. The occurrence of CdLS is estimated to be 1 in 10,000 live births. (For more information about the syndrome, please visit www.cdlsusa.org )
While Will was given a short life expectancy (originally told he may not live to be a year old), he is turning 24 in September!!!
Last year I ran the half marathon and it was such a great experience to run that far, to run for Will, and just to be a part of such great day in Saratoga. This year I will be running the 5k so that I can hurry up and get back on the course to cheer on my other teammates as they run for Will and CdLS in the Half Marathon.
The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS make informed decisions throughout their lives. Any amount you are able to donate will go directly to the foundation.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
Thank you for visiting my page, and thank you in advance for anything you are able to donate. Finally, if you are in the area, feel free to come out to the Saratoga Palio and cheer on Team CdLS on Sunday, September 20th!
"Where there's a Will, there is a way!"
Cornelia De Lange Syndrome Foundation, Inc. wrote -
The Saratoga Palio takes runners on a tour of downtown Saratoga Springs, the campus of Skidmore College and the tree-lined roads of Saratoga Spa State Park. Join the team in the half marathon or 5K to raise much needed funds for programs and services that the CdLS Foundation provides individuals affected by the challenges of this little known syndrome. Visit the Team CdLS - Saratoga Palio Web site to learn more.