Skip to content
jeanheekim's profile image - click for profile

Jeanhee Kim's Fundraiser:

New Jersey Marathon/Long Branch Half Marathon

Jeanhee's Photo
Jeanhee's Photo
Jeanhee's Photo
 

Jeanhee Kim via Crowdrise
May 05, 2013

What a gorgeous day for a race! Ran my best time ever and am thrilled to be nearing $6K in my fundraising! There's still time to donate!  See more

BENEFITING: CURE CMD

ORGANIZER: Cecilia

EVENT DATE: May 05, 2013

Jeanhee Kim

THE STORY:

I run a half marathon every year for my niece Sophie (with the snowman at left) and to raise funds for CureCMD. Sophie is 6 years old and has Ullrich CMD, an extremely rare genetic condition. She uses a power wheelchair to get around and has very low muscle tone throughout her body. But her mind is untouched and she is fiercely intelligent, outgoing, and has a fun-loving, sassy spirit. Her big aspiration is to be a pop singer, and she loves to belt out Taylor Swift, Selena Gomez, Katy Perry, and Adele (scroll to the video at left when she sang at a fundraiser for CureCMD!).

Ullrich CMD is a genetic disorder that leaves children like Sophie without Collagen VI in any of their cells. With so few people in the world who have Ullrich, there are no treatments and no cure. There have been nearly no trials or experiments undertaken to even try. Money is needed to fund researchers who are willing to look at this rare disorder. Meanwhile, time is running out. Sophie's condition is degenerative.

Ironically, Collagen as an anti-aging beauty treatment is available in drugstores on nearly every corner here in New York City. Think how many millions of dollars must have been poured into experimenting with collagen to fill our lines and wrinkles and none for finding a way for Sophie to walk, breathe freely, and live a longer, stronger life.

I hope you will join me by making a donation. Every dollar is deeply appreciated and will be put to good use!

DONATE

To This Fundraiser

$5,871

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Emily and Adam Halpern

     

  • Rebecca Baggett

    $150

  • Lia S.

     

  • Anthony T.

     

  • Anonymous

     

  • Linda Anderson

    $20

  • Sandra D. Katz

     

  • Susan Flint

     

  • Elyse and Barry

    $100

  • Sara Rubin

    $25

  • Jennifer Morris

    $40

  • Clare & Myriam

    $25

  • Lucila, Francisco, Nina and Galo

    $50

  • Harrison Family

    $100

  • KB

    $20

  • Kim Lewis/Brent Forester

    $50

  • Zoe Gonzalez Martinez

    $20

  • The Wayner Family

     

  • Kim/Lee family

    $100

  • Sarah & Ryan Lillis

     

  • Kendall Genre

    $50

  • Tonya Joly

    $100

  • Julie Chasin

    $25

  • Greer Goodman

     

  • Liz Wall

     

  • Nina Beattie

    $200

  • Ned Ward

    $100

  • Steven Namgi Kim

     

  • Yungsook kim

    $250

  • Anna Wong

    $20

  • Amy Lee

    $25

  • Bryan C

    $20

  • Nancy P

    $50

  • Marc Elovitz and Andrew Fields

     

  • Joohee Clare Yun

    $100

  • Sophie Schwenger

    $50

  • Tatum Birnhak

    $25

  • Dan & Melanie

    $50

  • Mary and Steve

     

  • Anonymous

     

  • Emily Bukowski-Thall

     

  • Andrew, Eunice, Sophie and Rohan Kim

    $1,000

  • Anonymous

    $50

  • Jayne Pearl

    $36

  • J Bieneman

    $50

  • Damian & Julia Kim

    $300

  • Miriam Hsia

    $50

  • Trevor Morrison

    $100

  • Feven Teklu

    $25

  • Irene Dorzback

     

  • Gretchen Feltes

    $50

  • David Niedenthal

    $50

  • Joong Chul Lee

    $100

  • MoonJa Oh

    $100

  • Papa Family

    $50

  • Betsy Wissinger

     

  • meri treitler

     

  • Eric Achacoso

    $50

  • Anonymous

     

  • Melanie Hochberg Giger

    $20

  • Arek Lipinski

    $25

  • Melanie Melia

    $250

  • Anne Rohaiem

    $50

  •  
  •  
  •  
 

168% Raised of $3,500 Goal

Fundraise for this Campaign

The Team: $26,054 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Michael Sanchez

Amount Raised

$8,115

 

8115% Raised of $100 Goal

Fundraiser Title

Jeanhee Kim

Amount Raised

$5,871

 

168% Raised of $3,500 Goal

Fundraiser Title

Mari Schindele

Amount Raised

$3,343

Fundraiser Title

Ashley and Michael Sanchez

Amount Raised

$3,060

 

3060% Raised of $100 Goal

Fundraiser Title

Jessica Young

Amount Raised

$2,525

 

84% Raised of $3,000 Goal

Fundraiser Title

Cecilia Kodama

Amount Raised

$860

 

86% Raised of $1,000 Goal

Fundraiser Title

Jill Conway

Amount Raised

$455

 

91% Raised of $500 Goal

Fundraiser Title

Amanda Sanchez

Amount Raised

$360

 

360% Raised of $100 Goal

Donor Comments

Anne Rohaiem

Anne Rohaiem

DONATION: $50

4 years ago

Melanie Melia

Melanie Melia

DONATION: $250

For Sophie. Go Jeanhee! 4 years ago

Arek Lipinski

Arek Lipinski

DONATION: $25

4 years ago

Melanie Hochberg Giger

Melanie Hochberg Giger

DONATION: $20

Good luck Jeanhee!! 4 years ago

Anonymous

ANONYMOUS

4 years ago

Eric Achacoso

Eric Achacoso

DONATION: $50

4 years ago

meri treitler

meri treitler

yeah jeanhee!!! 4 years ago

Betsy Wissinger

Betsy Wissinger

Go Jeanhee! 4 years ago

Papa Family

Papa Family

DONATION: $50

4 years ago

MoonJa Oh

MoonJa Oh

DONATION: $100

4 years ago