I am running for 6-year old Sophie, pictured here with her baby brother. Sophie is a fun-loving girl and budding pop sensation. She can no longer run due to her low muscle tone caused by Ullrich CMD, a rare genetic condition.
Sophie is my brother's niece and I am running with my sister-in-law, Jeanhee. As Sophie can not run, we are running for her to help Cure CMD develop treatments and a cure for Ullrich CMD.
Cure CMD works globally with world-renowned researchers, parent advocates and governmental agencies to increase awareness and fund research projects.
Please donate generously to support Sophie, Cure CMD and my 13.1 mile journey.