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Yamil Kouri's Fundraiser:

Team Eye and Ear Boston Marathon 2012

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owner profile imageYamil Kouri via Crowdrise
February 12, 2012

Dear Friends: I'm running for Team Eye & Ear in appreciation for saving my son's vision after having a retinal detachment.  See more
Yamil Kouri

THE STORY:

We’ve all experienced highs and lows in life. The key is to take the lows and turn them into something positive and bigger than ourselves.  I am writing to you today to share with you my gratitude and commitment to Dr. Shizou Mukai and the Massachusetts Eye & Ear Infirmary.

Many of you know that my son, Yamil, was diagnosed at the age of two with a rare genetic connective tissue disorder called Marfan syndrome. It is a multi-system disorder mainly affecting the heart, eyes, and skeletal systems. For many years our biggest concern was the integrity of his dilated aorta, with a near second concern for his vision. We have been committed to finding the very best clinicians and research to create a treatment care plan that would give him the best odds of a full and healthy life.

 

At the age of 5 we took him to Perkins School for the Blind’s Low Vision Clinic where he was labeled legally blind (20/200 with corrective lenses). We registered him with the Mass Commission for the Blind and he entered kindergarten with the support of Orientation and Mobility Specialist, a Teacher for the Visually Impaired and legal requirements for the school to provided enlarged materials, magnifying glasses, priority seating and more. However, we continued our search to improve his vision.                         

Finally in 2009 at the hands of the very talented ophthalmologist Dr. Lois Smith at Children’s Hospital Boston, Yamil was granted near perfect vision of 20/25! It was an AMAZING year! He learned to ride a bike and more. Yamil has a competitive nature was desperate to be like a regular boy and play a sport. My wife and I struggled with the decision, but ultimately let him play minor league baseball. We knew he would not be a star, but wanted to give him the experience. He wore his uniform constantly!  This was a dream come true for him. In late June his team made it to the playoffs. Yamil was playing third base and in a very routine play he caught a pop-up fly and made the out. The coaches, parents and my wife and I were brought to tears (of joy) and cheered for him as if he won the World Series!

On August 23, 2010, at a routine eye exam with Dr. Smith, we discovered that Yamil had a retinal detachment that affected more than 50% of his retina. Our gratitude for the year of normal vision turned to despair with this grave situation. We were immediately referred to Dr. Mukai at Mass Eye and Ear and he scheduled the urgent surgery.

Dr. Mukai is one of the leading experts in retinal surgery in the U.S. He was able to externally repair Yamil’s retina and allow for a significantly less restrictive recovery than an internal repair. Yamil was able to start fifth grade will all his friends a few days after his surgery! Today, Yamil is reading and enjoying Middle School. His vision in his “bad” eye is 20/60 with the possibility to continue to improve!

We are all blessed! Yamil is committed to sharing his story and give hope to others whose vision is threatened. As a physician, I am deeply indebted to Dr. Mukai and his ability to fix what I could not.

I will be running the Boston Marathon on Monday, April 16th in an effort to raise money to support Dr. Mukai’s sight saving work. My goal is to raise at least $10,000. I hope that you will consider joining me in making a difference in preserving the fragile gift of sight.  

Thanks for your consideration and warm regards,

.

$15,487

MONEY RAISED
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  • Arlene, Russ and Sam Champey

    $50

  • Kovrlija Family

     

  • Jeanette Navia

    $25

  • Anne & Steven Heutlinger

     

  • Yamil Kouri

    $100

  • Brian Callan

    $300

  • Katie Mitchell

    $100

  • Jack and Linda Thompson

    $1,000

  • Michele Bernier and David Brossi

    $200

  • Henry Marquez

     

  • Anonymous

    $50

  • Don Ross and Nancy Faye Glass

    $250

  • Sofia & Lucia Kouri

    $100

  • The Driscolls

    $300

  • Julie Driscoll & Bob Morsilli

    $100

  • Jonathan Martin

    $25

  • Lisa Freed & Theodore Sussman

    $200

  • The Gornstein Family

     

  • CrowdRise

    $25

  • Lynnell Stern

    $50

  • Pat Lawton & Phil Gaisford

    $200

  • Anthony Straceski and Janine LeBlanc-Straceski

    $250

  • The Crooke Family

    $50

  • The Podgurski Family

    $50

  • Diane and Gerard Coste

    $75

  • Rick and Ellen Sawyer

    $250

  • Pat and Joe

    $25

  • Rick and Gerri Atkins

    $100

  • Evelyn Collazo

    $500

  • Levine Orthodontics

    $100

  • Annie and Andy

    $25

  • Dan Boylan

    $100

  • Angela & Brian Driscoll

    $50

  • Upesh & Emily Patel

    $100

  • Amy & Michael Zaslow

    $25

  • C. Scott Amann & Shelagh C. Amann

    $200

  • John & Suzanne Bruno

    $100

  • Leslie & Samuel Zales

    $100

  • Christine & Phillip Carter

    $500

  • Kenneth & Nancy Fishman

    $100

  • Daniel & Amy Keenan

    $100

  • Judith Ann Michaud

    $50

  • Suzanne & Jonathan Winslow

    $100

  • Charles & Michelle Mabardy

    $50

  • Yamil H. Kouri, M.D. & Suzanne M. Kouri

    $107

  • Christine & Robert Lees

    $100

  • Ernest Van B. Seasholes

    $50

  • Jack & Sheila Evjy

    $100

  • Beth Johnson

    $25

  • Leo John Harris & Moira F. Harris

    $50

  • Gloria Ibarra Santana, MD

    $1,000

  • Blue K. Smith

    $100

  • Alfred L. Hemeon & Stanaley P. Poirier

    $200

  • Pedro M. Sanz-Altamira & Maria Nieves Rios-Moya

    $100

  • Kenneth D. Hintlian

    $100

  • Thomas & Carol Driscoll

    $25

  • Gavin & Wendy Lindberg

    $100

  • Alredo & Andrea Frohlich

    $1,000

  • Stanley P. Poirier & Judith Ann Michaud

    $100

  • Pencom Systems Incorporated

    $100

  • EJM Public Relations

    $25

  • Mainstream Global, Inc

    $250

  • Kevin E. Chun, MD & Raquel O. Chun

    $250

  • Hector D. Molina Vicenty & Irma I. Ortiz Arroyo

    $1,000

  • Ron & Jon

    $150

  • Quint Family

    $100

  • Alison Coolidge & Tom Boreiko

    $250

  • Josh Matteson

    $100

  • Todd & Maria Barrett

    $100

  • Wasei Layous

    $50

  • Tammy & Billy Smith

    $50

  • Chiriboga Family

    $200

  • Dr. Peter P. McCann

    $50

  • Paul and Spieler

    $100

  • Pierre & Grace Chahraban

    $100

  • mark and pat hibberd

    $100

  • Mark A. Butterline

    $50

  • Wallace E. & Nancy C. Stickney

    $200

  • Yamil H. Kouri, MD, PhD

    $200

  • Geoffrey Bernard Lewis

    $100

  • Ann Reinking

    $500

  • Eduardo Alvarez & Adriana Martinez

    $40

  • Barry Pisick, MD & Debra Black-Pisick

    $100

  • George Kramer

    $50

  • Pamela & Paul Bourke

    $50

  • Bell Tower Management, LLC

    $100

  • Martha & Robert Martin

    $100

  • Heather Holmes Floyd

    $50

  • Michael J. Landman, MD, PC

    $250

  • Marcos Diaz & Fabiola Martin-Diaz Trust

    $200

  • Lawrence General Hospital Medical Staff

    $500

  • LGH

    $20

  • Fernando & Maria Iglesias

    $75

  • William & Jean Pierce

    $50

  • Louis & Sarah Woold

    $50

  • Mr. and Mrs. Saul Palder

    $150

  • David Model

    $250

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The Team: $394,915 TOTAL RAISED SO FAR

Fundraiser Title

Massachusetts Eye and Ear Infirmary

Amount Raised

$64,290

 

18% Raised of$350,000 Goal

Fundraiser Title

Brad Terry Zimmerman

Amount Raised

$21,145

Fundraiser Title

Joseph Rizzo

Amount Raised

$17,160

 

66% Raised of$26,000 Goal

Fundraiser Title

Yamil Kouri

Amount Raised

$15,487

Fundraiser Title

carolyn shea

Amount Raised

$14,080

 

282% Raised of$5,000 Goal

Fundraiser Title

Will McNamara

Amount Raised

$12,993

 

87% Raised of$15,000 Goal

Fundraiser Title

Russ & Lisa Fleming

Amount Raised

$11,625

 

116% Raised of$10,000 Goal

Fundraiser Title

Robert Knapp

Amount Raised

$11,100

Donor Comments

David Model

David Model

DONATION: $250

7 years ago

Mr. and Mrs. Saul Palder

Mr. and Mrs. Saul Palder

DONATION: $150

7 years ago

Louis & Sarah Woold

Louis & Sarah Woold

DONATION: $50

7 years ago

William & Jean Pierce

William & Jean Pierce

DONATION: $50

7 years ago

Fernando & Maria Iglesias

Fernando & Maria Iglesias

DONATION: $75

7 years ago

LGH

LGH

DONATION: $20

7 years ago

Lawrence General Hospital Medical Staff

Lawrence General Hospital Medical Staff

DONATION: $500

7 years ago

Marcos Diaz & Fabiola Martin-Diaz Trust

Marcos Diaz & Fabiola Martin-Diaz Trust

DONATION: $200

7 years ago

Michael J. Landman, MD, PC

Michael J. Landman, MD, PC

DONATION: $250

7 years ago

Heather Holmes Floyd

Heather Holmes Floyd

DONATION: $50

7 years ago