BENEFITING: Massachusetts Eye and Ear Infirmary
ORGANIZER: Massachusetts Eye and Ear Infirmary
EVENT: 2016 Boston Marathon
EVENT DATE: Apr 18, 2016
My patient partner is Flynn, an active, curious and clever three-year old. He loves construction vehicles, playing sports and spending time with his little sister. He also has a medically complex history, having had to endure an early and complicated birth, months in the NICU, numerous surgeries, countless hospitalizations, doctors visits and therapy sessions. He has grown leaps and bounds in his little life.
Flynn's parents were referred to Dr. Christopher Hartnick over two years ago when it was discovered that Flynn would need laryngotracheal reconstruction due to acquired subglottic stenosis. They immediately transferred Flynn’s otolaryngology care from his primary hospital to Massachusetts Eye and Ear based on Dr. Hartnick’s known expertise in the field as well as his attentive and confident demeanor. These traits have proved to be true throughout Flynn’s continued care under Dr. Hartnick and his team at Mass. Eye and Ear.
Although Flynn received his tracheostomy as an infant at a different hospital, his parents have become fully engaged in the supportive community Dr. Hartnick has established at Mass. Eye and Ear. This community, centered on family based education and collaboration, has helped shape them into active and committed participants, advocates and advisors amongst a fraternity of patient families and clinicians. The collaboration of families and clinicians has created such initiatives as scripted teaching, video modeling, parent support luncheons, mentoring and family outings.
The team at Mass. Eye and Ear is largely responsible for where Flynn is today. I hope you'll help me raise funds to help kids like Flynn and their families.
The funds raised for “Operation Airway” at Mass. Eye and Ear will help kids like Flynn here and abroad through innovative research to develop bioresorbable 3D printed tracheal stents as well as biocompatible laryngeal transplants and also by providing humanitarian education and training to help children and their families abroad and to train the local health care so that the mission becomes sustainable.