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Leah Ofsevit's Fundraiser:

Celiac Disease Foundation NYC Marathon 2015

Leah's Photo
Leah's Photo
Leah's Photo
Leah Ofsevit

THE STORY:

My Celiac story begins back in the summer of 2009. I had just graduated from college and accepted a great job I couldn’t wait to start. I was on top of the world… except for the fact that I felt terrible. Bloating, gas, constipation—you name it, I had it. These symptoms had plagued me for over a year, and nothing I was doing seemed to make me feel any better. As an otherwise healthy young person, I felt defeated. I finally headed to my doctor’s office, and after a series of scans and blood tests, she sent me to see a gastroenterologist. In the meantime, I had traveled to California for a training program and was nervously calling back and forth to my parents in between workshops. As soon as I could, I flew home to Boston and took an hour long subway trek to get to the GI who had the earliest available appointment. In an appointment that totaled 15 minutes, he told me in no uncertain terms I had Celiac disease, shoved a pamphlet in my hands, informed me I needed to stop eating gluten immediately, and sent me packing.

Looking back, I ask myself so many questions. Did the doctor give me any information as to what led him to his diagnosis? He did not. Did he tell me that by beginning a gluten free diet immediately I would forever pass up the opportunity to get the kind of ultimately conclusive diagnosis I now know can only come from an endoscopic biopsy? He did not. Did he take the time to fully explain how this news would change nearly every decision I made at every meal I ate for the rest of my life? He did not.

This is my story. I’ll be damned if it’s anyone else’s. And this is where the Celiac Disease Foundation comes in. Time and time again, when I’m looking for the most reliable information and steadfast Celiac advocacy, I turn to the CDF. The work the CDF does on behalf of the Celiac community is remarkable, and I’m ready to do something remarkable for the CDF. I’m going to run my first marathon. And I would appreciate any support that you can offer.

Thank you, thank you, thank you—not just from me, but from the everyone living with Celiac—adults, kids, diagnosed and undiagnosed. Every dollar and every step bring us closer to finding a cure.

From the CELIAC DISEASE FOUNDATION:

For the past 25 years, CDF has driven early diagnosis and treatment of celiac disease through education, advocacy and advancing research to improve the quality of life for all people affected by gluten-related disorders. Celiac Disease Foundation brought together scientists and physicians to create today's celiac disease blood test panel, lobbied NIH and CDC to recognize celiac disease as one of the world's most prevalent genetic autoimmune disorders, lobbied the FDA for today's gluten-free labeling rule, and partnered with mainstream manufacturers to create today's multi-billion dollar gluten-free marketplace. CDF looks to the future to assure that all people with celiac disease and other gluten-related disorders are diagnosed and treated, and one day, cured.

$3,771

MONEY RAISED
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  • Leah Ofsevit

    $100

  • Brad & Stacey

     

  • Dimitry N :)

    $25

  • Hannah Gutterman

    $36

  • Chase Cooper

    $200

  • Anonymous

    $36

  • Nancy Mazonson and David Ofsevit

    $200

  • Shaina Druy

    $40

  • Sara Bookin-Weiner & Matt Brown

    $36

  • Erica Gornstein

    $35

  • Rachel & Nate

    $72

  • Maura Monahan

    $30

  • Christina Parks

    $35

  • Jeff and Beth Green

    $50

  • Deb Siegel

    $30

  • Dan and Sarah Kinsley

    $75

  • Krista and Pedey

     

  • Neena N

    $20

  • Lewis Seton

    $25

  • Nate Mazonson

     

  • Peter and Mary Ann

    $200

  • Bob & Lynn Dashevsky

    $100

  • Betty and Gail Pohn

    $26

  • Adam King

    $50

  • Valerie Levy

    $100

  • Jess Piecewicz

     

  • Melissa P

     

  • Cheryl Muise

    $10

  • Martha Mazonson Scarborough

    $100

  • Alice & Eric Thomas

     

  • Corinna McFarland

     

  • Kathy McGhee

    $50

  • Anonymous

     

  • Elise & Joe Wojciechowski

    $50

  • Bryanne Mahoney

    $36

  • Ron Garczynski

    $100

  • Ruth and Jerry Jacobs

    $36

  • Jeremy Garczynski

    $100.80

  • alicia kim-shen

     

  • Susan Paris

    $30

  • Sara Schock

    $25

  • Anonymous

     

  • Beck Ringhouse & Bill Pharr

    $100

  • Alaska Friends

    $50

  • Levy/Yanowitch family

    $40

  • Christy and Saul Pohn

    $50

  • Doug, Alison, Kyle, and Katy

    $50

  • Jason and Marissa

    $36

  • Cole & Corwin

    $50

  • Jill Endres

    $20

  • Erica Birnbaum

     

  • Nick J

    $100

  • Leila and Dudi

    $25

  • Dara Klein

    $36

  • Vera & Alex Moshkevich

    $50

  • Anonymous

    $20

  • Barbara and Marc Mitchell

    $50

  • Carol and Jesse Reisner

    $25

  • Greta Morgan

    $25

  • Kacey & Alec Ofsevit

     

  • Nancy and Paula Lichter

    $50

  • Yanil Regus

    $25

  • Steph Huang

     

  • Gillian

    $30

  • Megan Kaminska

     

  • Sharon and Sam Ofsevit

    $50

  • Dan and Sarah Kinsley

    $79

  • Anonymous

    $20

  • Katie Fiedler

    $26.20

  • Allison Tick Brill

    $100

  • Ari

    $50

  • Brett Kalikow

    $50

  • Amy Fisher

    $25

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108% Raised of$3,500 Goal

The Team: $15,634 TOTAL RAISED SO FAR

Fundraiser Title

Jose M Sanchez-Seara

Amount Raised

$5,070

 

145% Raised of$3,500 Goal

Fundraiser Title

Leah Ofsevit

Amount Raised

$3,771

 

108% Raised of$3,500 Goal

Fundraiser Title

Brian Simeon

Amount Raised

$3,726

 

106% Raised of$3,500 Goal

Fundraiser Title

peggy weiss

Amount Raised

$2,332

 

67% Raised of$3,500 Goal

Fundraiser Title

Joshua Tennison

Amount Raised

$685

Fundraiser Title

Heather Simeon

Amount Raised

$50

Fundraiser Title

CELIAC DISEASE FOUNDATION

Amount Raised

$0

 

0% Raised of$21,000 Goal

Fundraiser Title

John Paul Hayes

Amount Raised

$0

Donor Comments

Amy Fisher

Amy Fisher

DONATION: $25

3 years ago

Brett Kalikow

Brett Kalikow

DONATION: $50

3 years ago

Ari

Ari

DONATION: $50

3 years ago

Allison Tick Brill

Allison Tick Brill

DONATION: $100

Go Leah! 3 years ago

Katie Fiedler

Katie Fiedler

DONATION: $26.20

Good luck Leah! You'll crush it!! 3 years ago

Anonymous

ANONYMOUS

DONATION: $20

3 years ago

Dan and Sarah Kinsley

Dan and Sarah Kinsley

DONATION: $79

3 years ago

Sharon and Sam Ofsevit

Sharon and Sam Ofsevit

DONATION: $50

good luck on your run 3 years ago

Megan Kaminska

Megan Kaminska

Good luck, Leah!! Show that pavement who's boss! 3 years ago

Gillian

Gillian

DONATION: $30

3 years ago