Team Hanna G and ME 2016

Royalty Crests
Comments

To leave a comment Login or Signup

Team Hanna G and ME
Team Hanna G … SAYS:
THANK YOU (We learned some d…
THANK YOU (We learned some donors did not get this note the first time so we're sending again!)

Team Hanna G and ME,

Thank you for supporting the 2016 POTS Walk. You ran, walked, donated and spoke out to raise funds and awareness for POTS and thanks to you, the Walk was a huge success. May 7th served as a beacon of hope — to patients struggling with POTS and to all the people who love them — that the movement demanding increased awareness, fundraising and research for POTS is growing. Last year the 2015 POTS Walk was the largest fundraiser ever held for POTS research. This year we set the record again! Don’t just take my word for it — the numbers speak for themselves.

For the POTS Walk as a whole: Last year, 776 people donated, 400 people participated and we raised $45,000. This year, a whopping 1212 contributed, 575 people registered and we crested $75,000 in donations. In just one year the Walk has nearly doubled.

As for Team Hanna G and ME: Last year, 145 people donated, 50 people participated and we raised $10,000 in small to medium-sized donations. This year, 220 people opened their wallets, 75 team members were present and we crested $15,000! Team Hanna G and ME was again the largest team at the Walk, in numbers and in dollars, and together we made a big impact. Thank you!

So, team, we can and should spend time basking in the success of the Walk, but then we must get back to work. There are 1-3 million Americans battling POTS every day and they need a voice. Events like this give voice to POTS patients, but that voice needs to get louder. Please continue to speak out about POTS — educate your friends and your doctors — and please continue to push for increased research — through fundraising and lobbying. I need you in this fight. Together we can and will #breakPOTS. 

With deep gratitude,
Hanna
3 years ago
see more  
Team Hanna G and ME
Team Hanna G … SAYS:
Hello Friends, Thank you…
Hello Friends,
Thank you so much for signing up to participate in the POTS Walk this year! I cannot wait to walk alongside you. I’m reaching out now to ask that you leverage your networks to help us fundraise! My hope is that each team member will raise $100. Last year we had 50 people on team Hanna G and ME so if everyone raises $100 we will raise an additional $5,000, a sum that would make a huge difference in POTS research.
Fundraising this year is slower than last — we expected this. Last year was the first time I shared my story publicly and asked for friends to contribute to POTS research. But that means I need you, my team members, to join me in fundraising.
Below is a form letter you can send. Thank you for fighting with me!
Love, Hanna

Form letter:
On May 7th I will be walking in the 2016 POTS Walk & 5k in Medford MA. POTS (postural orthostatic tachycardia syndrome) is the most common forms of dysautonomia, an umbrella term used to describe illnesses of the autonomic nervous system. POTS is a debilitating illness that affects almost every system in your body. Intense dizziness, extreme weakness, towering fatigue, nasty tachycardia as well as crippling gastrointestinal issues, hypersensitivity, numbness and pain are all common POTS symptoms.
POTS patients are overwhelmingly young and female — 85% of patients are women and most develop POTS during childbearing age. Despite the fact that few have heard of it, POTS affects 1 in 100 teenagers and over 1 million Americans. Most doctors have never heard of POTS and the average time from onset to diagnosis is 6 years.
My friend developed POTS at the age of 17 and it took her 7 years and 100+ medical appointments to receive a diagnosis. Now she is living with an illness that cannot be effectively treated as POTS is a chronic, incurable condition. I am walking in May to show support for my friend and for the millions of others living with this condition. If you want to learn more about POTS you can visit DysautonomiaInternational.org and I encourage you to read my friend's personal essay about living with POTS in Teen Vogue. http://www.teenvogue.com/story/how-to-live-survive-pots-postural-orthostatic-tachycardia-syndrome
Research is desperately needed to find effective treatments and someday a cure. Please, if you are able, donate today. https://www.crowdrise.com/teamhannagandme20161-2016potswalk5krace/fundraiser/teamhannagandme20161
I greatly appreciate your support!
3 years ago
see more  
Team Hanna G and ME
Team Hanna G … SAYS:
Hi there, On May 7th I will…
Hi there,

On May 7th I will be walking in the 2016 POTS Walk & 5k in Medford MA. POTS (postural orthostatic tachycardia syndrome) is one of the most common forms of dysautonomia, an umbrella term used to describe illnesses of the autonomic nervous system. POTS is a debilitating illness that affects almost every system in your body. Intense dizziness, extreme weakness, towering fatigue, nasty tachycardia as well as crippling gastrointestinal issues, hypersensitivity, numbness and pain are all common POTS symptoms.

POTS patients are overwhelmingly young and female — 85% of patients are women and most develop POTS during childbearing age. Despite the fact that few have heard of it, POTS affects 1 in 100 teenagers and over 1 million Americans. Most doctors have never heard of POTS and the average time from onset to diagnosis is 6 years.

My friend developed POTS at the age of 17 and it took her 7 years and over 100 medical appointments to receive a diagnosis. Now, she is living with an illness that cannot be effectively treated as POTS is a chronic, incurable condition. I am walking in May to show support for my friend and for the millions of others living with this condition. If you want to learn more about POTS you can visit DysautonomiaInternational.org and I encourage you to read my friend's personal essay about living with POTS in Teen Vogue.

Research is desperately needed to find effective treatments and someday a cure for POTS. Please, if you are able, donate today. Here is the link to make a contribution. If you choose to donate, please remember to see if your company does corporate matching! I greatly appreciate your support!

Many Thanks,
(your name)
3 years ago
see more  
Team Hanna G and ME
Team Hanna G … SAYS:
A note from Hanna on Corpora…
A note from Hanna on Corporate Matching -Doubling your donation!

Hello Friends,

Thank you all for contributing to the 2016 POTS Walk! I cannot tell you how much I appreciate it and how incredibly important your donations are.

So what if I told you you might be able to double your impact on POTS research? Many companies will match donations to non-profits, so please see if your company does corporate matching! If your company participates, it will match your donation amount. If you don’t know whether or not your company participates in corporate matching, reach out to your HR department.

Let me know if you have any questions or need help finding your company’s status.

Thanks!
Hanna
3 years ago
see more  
Team Hanna G and ME
Team Hanna G … SAYS:
test
test
3 years ago
Team Hanna G and ME 2016
Team Hanna G and ME 2016
Ipswich, MA United States
CROWDRISING SINCE: Feb 08, 2016
Stuff About Me:

The person who created this page is probably preparing something riveting to post about everything they're doing to give back. We recommend you sit at your computer and hit refresh over and over until their story goes live. You should also scroll down and see if they have a fundraiser going so you can support 'em.

Team Hanna G an…
2016

VOTE

CR Impact Points

Click the VOTE button to give Team Hanna G and ME 100 CrowdRise Impact Points (CIPs). Vote for the Volunteers and Fundraisers that are answering the call to service, raising money for charity, and making an impact for their causes. Come back and Vote every months. CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.

CR Impact Points

If you're seeing the grey VOTE button, you should feel great about yourself. It means you already voted for Team Hanna G and ME this month. Come back next month and vote again if you still love Team Hanna G and ME. Thanks to your vote, Team Hanna G and ME earned 100 CrowdRise Impact Points (CIPs). CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.

76,050

Total Impact Points

Team Hanna G and ME 2016's Fundraisers

Team Hanna G and ME 2016 Image

Team Hanna G and ME 2016

Amount Raised:

$15,608

 

104% Raised of$15,000 Goal