EVENT DATE: May 05, 2013
The Orange County Chapter of Huntington's Disease Society of America is honored to be one of the non-profit partners of the Orange County Marathon/Half Marathon.
Huntington’s Disease (HD) is an inherited autosomal-dominate neuro-degenerative disorder with symptoms likened to the worst of those associated with Parkinson’s, Alzheimer’s and ALS; currently there is no known cure. After an otherwise normal life, symptoms usually begin between the ages of 30 and 50 however with Juvenile HD symptoms begin under 20 years of age and then progress more rapidly with a life expectancy of approximately 10 years. During this time the rest of the family shares the pain as they care for and watch their loved one slowly lose the ability to walk, talk, eat and think; all the time trying to pay the bills and wondering how long it will last, who will be next, and when it will start.
The Huntington’s Disease Society of America (HDSA) is the nation’s largest community based non-profit organization dedicated solely to HD. Our purpose is to promote and support research and medical efforts to eradicate HD, to assist families affected by HD and to educate the public about HD. We’ve worked with and been endorsed by renowned researchers like Dr. Leslie Thompson at UCI, have played a key role in starting the UCI HD Support Group, are working to bring a HD care home to Orange County, and have been successfully recruiting an increasing the number of participants for clinical trials.
Please help us in our efforts to provide help for those who suffer from HD. To learn more about Huntington's Disease and our Orange County Chapter, please click HERE.
Help for today. Hope for tomorrow.