EVENT: The Louisiana Marathon 2014
EVENT DATE: Jan 19, 2014
International Rett Syndrome Foundation wrote -
The Rett Racers are a group of dedicated and enthusiastic volunteers for the International Rett Syndrome Foundation (IRSF) who are raising vital research dollars while training for distance events like the Louisiana Marathon. Are you running the Louisiana Marathon and want to join the Rett Racers? Join our team today and set your own fundraising goal – you could earn Rett Racer Nike gear based on the money you raise! An IRSF representative will contact you after you set up your page. Email firstname.lastname@example.org with any questions or for more information.
About Rett syndrome
Rett syndrome is a genetic neurological disorder that occurs almost exclusively in females and becomes apparent after 6-18 months of early normal development. It results in a regression that leads to lifelong impairments. Those inflicted with this disorder have multiple dysfunctions: speech is lost, seizures develop and scoliosis occurs, many develop irregular breathing patterns, and more than half of the girls and women lose their ability to walk. Those diagnosed with Rett syndrome require maximum assistance with even the most basic daily activities. The hallmark sign of Rett syndrome is near constant repetitive hand movements while awake.
The International Rett Syndrome Foundation (IRSF) is the world’s leading private funder of basic, translational and clinical Rett syndrome research, funding over $24M in high-quality, peer-reviewed research grants and programs to date. Annually, IRSF hosts the world’s largest gathering of global Rett researchers and clinicians to establish research direction and priorities while exchanging ideas and the most recent information. IRSF is the most comprehensive non-profit organization dedicated to providing thorough and accurate information about Rett syndrome, offering informational and emotional family support, and stimulating research aimed at accelerating treatments and a cure for Rett syndrome and related disorders. IRSF has earned Charity Navigator’s most prestigious 4 star rating.
Learn more by visiting www.rettsyndrome.org.