BENEFITING: EB Research Partnership
ORGANIZER: EB Research Partnership
On November 4th, I will be running the NYC Marathon to support the Jackson Gabriel Silver Foundation (JGSF), a nonprofit organization that is very dear to me. It was founded by my friends Alex and Jamie Silver, whose son Jackson was born with Epidermolysis Bullosa ("EB"), a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth. JGSF funds scientific research with the goal of curing and treating this devastating disease, not only for Jackson’s sake but for the thousands of other children and families coping with EB.
Practically speaking, a child who suffers from EB lacks a critical protein that binds his or her layers of skin together. Imagine your skin being as fragile as a butterfly's wings. Imagine every movement you make causing your skin to shear off your body.
Jackson is a pre-school classmate of our older daugther, Amelia, and we've had the privilege of getting to know the whole Silver family here in New York City. Jackson is a wonderful, fun-loving, and extremely bright little boy and I'm thrilled to be running in support of him. I hope you will join me in meeting my fundraising goal. Your contributions will go to support promising therapies being developed at Stanford, USC, and the University of Minnesota to help treat and find a cure for EB. Go to www.jgsf.org to learn more about Jackson and EB.
Thanks for your support!