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Kathleen Twible's Fundraiser:

Team JGSF NYC Marathon 2012

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Kathleen's Photo
 

Kathleen Twible via Crowdrise
July 11, 2012

So we are back for Round 2 !! Going the distance for the fighter in our lives. Join us in finding a cure for EB!! We Love You Robbie !!  See more
Kathleen Twible

THE STORY:

Dear Family and Friends,

On November 4, 2012,  we will be running the NYC Marathon in honor of our son and friend Robert John Twible.  We will be part of the Jackson Gabriel Silver Foundation team and raise funds for a cure.  Jamie and Alex Silver have been funding research throughout the country and the world as well.  So much progress is being made.  We have more hope now than ever before.  We are so excited to be apart of such an amazing team!!

We are looking forward to being part of the 1% of people who can say that they have run a marathon.  As we prepare for the BIG DAY, we think of the marathon that Robbie has been running for the past 10 years.(Robbie turned 10 May 16th) For 10 years he has been bandaged daily and has suffered the pain of blistering on every part of his body.  He has been through numerous surgeries to help him eat and be able to swallow.  He has had to sit in darkness for days due to blistering in his eyes.  Daily he goes through painful bandage changes and baths to help fight infection.  With all that he goes through, Robert continues to move forward and fight back against this horrible disease.  He goes to school each day with a smile and loves being with his friends.  He performs for his family and loves to sing and dance.  Jersey Boys is his favorite- he wears a suit jacket and just bought a microphone stand from amazon- with all the pain he has such joy in his heart!!!  He makes so many people laugh and inspires us all.

Please join us in putting and END to this terrible disease.   Your donation will go toward research and finding a cure for EB. We want Robbie''s Broadway Debut to be PAIN FREE!! Without EB.  We thank you for your love and support and of course, your generosity. 26.2  HERE WE COME!!  God Bless!!!

Love, 

Kathy and Brian  xoxoxo 

Brian adds...

The NYC Marathon has been on my bucket list for years.  I needed something to help me make the necessary commitment.  I found that in my friend Robbie Twible!  He provides all the inspiration I need.  If you know Robbie, then you know exactly what I mean.  If you have not had the privilege of meeting Robbie, come to one of our fundraisers, meet Robbie, and join us in a celebration of life!  In the meantime, please donate and help us find a cure for EB!

$5,125

MONEY RAISED
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  • evelyn lolis

    $50

  • Valerie Rowe

    $200

  • Stephanie Sanchez

    $10

  • Ivy Miller

    $25

  • Roger Telsey

    $25

  • Gayle Ulmann

    $50

  • EBBU

    $150

  • Melissa De Santos Floridia

    $100

  • Brian & Jeanne Murphy

    $100

  • The PACOA Family

    $1,000

  • Lissa and Dave Short

    $100

  • Andrew and Alicia Dillion

    $50

  • Rebecca and Loretta Girard

    $100

  • Laura and Rose Paccione

    $50

  • Jeanne and Brian DeMasters

    $120

  • Al and Maura Eppler

    $40

  • Nancy Daly

    $80

  • Maryann and John Watch

    $80

  • David Kanner DDS

    $50

  • Patricia and Ben Signore

    $50

  • Louis and Adriana Macchiarulo

    $50

  • Keelin Reilly

    $100

  • Pat Finlay

    $100

  • Nalini Sukhdeo

    $40

  • Cohn Family

    $50

  • The O'Connells

    $25

  • The Kubel Family

    $50

  • Andrea Gerstenblatt

    $100

  • Margaret Korcynski

    $25

  • The Kaufman Family

    $100

  • Regina Mellett

    $100

  • Brian & Mary Jones

    $25

  • Trish and Mike Bonagura

    $25

  • LG

     

  • Amy and Sammy and Lee Mendel Rosenthal

     

  • Tom and Sharon Murphy

    $50

  • Anonymous

    $100

  • Anonymous

    $25

  • Karen Stracquadanio

    $25

  • Regina Savarese

    $100

  • Raffle For Robbie

    $530

  • KIm and Gary Derer

    $100

  • Lauren DiStasio and Andrea Keyloun

    $100

  • Thomas, Kerri, Thomas, Sean and John

    $100

  • Barbara & Mike Eisenberg and Ellie

    $500

  • Phil Nelan

    $100

  • Jamie Silver

    $100

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Fundraise for this Campaign

The Team: $38,388 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Scott Binger

Amount Raised

$6,247

 

208% Raised of $3,000 Goal

Fundraiser Title

Jeff and Maureen Berger

Amount Raised

$5,770

 

192% Raised of $3,000 Goal

Fundraiser Title

Kathleen Twible

Amount Raised

$5,125

Fundraiser Title

Jason Koenig

Amount Raised

$4,676

 

117% Raised of $4,000 Goal

Fundraiser Title

David Maas

Amount Raised

$3,640

Fundraiser Title

Jessica Manfro

Amount Raised

$3,005

Fundraiser Title

Mabel Cabrera-Falcon

Amount Raised

$3,000

Fundraiser Title

Ram Jagannath

Amount Raised

$3,000

Donor Comments

Jamie Silver

Jamie Silver

DONATION: $100

5 years ago

Phil Nelan

Phil Nelan

DONATION: $100

5 years ago

Barbara & Mike Eisenberg and Ellie

Barbara & Mike Eisenberg and Ellie

DONATION: $500

To all the Twibles, Your friends and family support you and are very proud of all of you. Kathy, we will be at the marathon, screaming for you, and Robbie, we are so inspired by your outlook on life and how you bring so much joy to others. Love, Barbara 5 years ago

Thomas, Kerri, Thomas, Sean and John

Thomas, Kerri, Thomas, Sean and John

DONATION: $100

5 years ago

Lauren DiStasio and Andrea Keyloun

Lauren DiStasio and Andrea Keyloun

DONATION: $100

5 years ago

KIm and Gary Derer

KIm and Gary Derer

DONATION: $100

5 years ago

Raffle For Robbie

Raffle For Robbie

DONATION: $530

5 years ago

Regina Savarese

Regina Savarese

DONATION: $100

5 years ago

Karen Stracquadanio

Karen Stracquadanio

DONATION: $25

5 years ago

Anonymous

ANONYMOUS

DONATION: $25

5 years ago