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Lauren Kreha's Fundraiser:

Team JGSF NYC Marathon 2012

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Lauren Kreha via Crowdrise
May 02, 2012

Raising money for the cure this year! Please drop a dollaah!  See more
Lauren Kreha

THE STORY:

Dear Friends and Family,   I figured this year, I would put my insane desire to run 26.2 miles to a good cause. On November 4th, I will be running the ING New York City Marathon (yes yes yes!!!) to support the Jackson Gabriel Silver Foundation (JGSF), a nonprofit organization that funds scientifitic research to cure and treat a disease call Epidermolysis Bullosa ("EB").   This devastating, painful, disfiguring and currently incurable blistering disorder affects children from birth. Practically speaking, a child who suffers from EB lacks a critical protein that binds his or her layers of skin together. Imagine your skin being as fragile as a butterfly's wings. Imagine every movement you make causing your skin to shear off your body.   Fighting this disease is particularly important to me because my coworker, Faye Dilgen has a son affected by EB. John Hudson is a very special boy with an adorable smile. I am amazed at Faye's strength every day as she works, cares for a family, and battles this disease with John Hudson.   Curing a rare disease is always a race against the clock. But curing EB is a race against a clock moving at warp speed. Children like John Hudson have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his shortened life.    There is tremendously encouraging work underway, and a cure for EB is within reach. The Jackson Gabriel Silver Foundation has already funded key research projects and is excited to collaborate with the brilliant scientists working on a cure for EB. Please note that nearly 100% of all donations flow directly through to supporting EB research. Since it began, JGSF has raised over $800,000 for disease research. Visit www.jgsf.org to learn more about this organization.   Please consider making a contribution. Every dollar brings us a step closer to finding a cure for this horrible disease.

 

$340

MONEY RAISED
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  • Andrew

    $50

  • Joey & Nick

    $50

  • Alison and Michael Deleget

    $50

  • Jenni

    $25

  • Bob & Jane

    $50

  • Anne Bob and John McIntyre

    $50

  • Kasey Johnson

    $25

  • Megan Richardson

    $20

  • Lauren Kreha

    $20

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Fundraise for this Campaign

The Team: $38,388 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Scott Binger

Amount Raised

$6,247

 

208% Raised of $3,000 Goal

Fundraiser Title

Jeff and Maureen Berger

Amount Raised

$5,770

 

192% Raised of $3,000 Goal

Fundraiser Title

Kathleen Twible

Amount Raised

$5,125

Fundraiser Title

Jason Koenig

Amount Raised

$4,676

 

117% Raised of $4,000 Goal

Fundraiser Title

David Maas

Amount Raised

$3,640

Fundraiser Title

Jessica Manfro

Amount Raised

$3,005

Fundraiser Title

Mabel Cabrera-Falcon

Amount Raised

$3,000

Fundraiser Title

Ram Jagannath

Amount Raised

$3,000

Donor Comments

Lauren Kreha

Lauren Kreha

DONATION: $20

5 years ago

Megan Richardson

Megan Richardson

DONATION: $20

5 years ago

Kasey Johnson

Kasey Johnson

DONATION: $25

6 years ago

Anne Bob and John McIntyre

Anne Bob and John McIntyre

DONATION: $50

Go Lauren Go! 6 years ago

Bob & Jane

Bob & Jane

DONATION: $50

6 years ago

Jenni

Jenni

DONATION: $25

6 years ago

Alison and Michael Deleget

Alison and Michael Deleget

DONATION: $50

Go Lauren! John Hudson is lucky to have you running for him! :) 6 years ago

Joey & Nick

Joey & Nick

DONATION: $50

Go Lauren! Go John Hudson! Mehrathons for health rock. 6 years ago

Andrew

Andrew

DONATION: $50

6 years ago