Stephanie Sanchez via Crowdrise
October 03, 2013
BENEFITING: EB Research Partnership
ORGANIZER: EB Research Partnership
Epidermolysis Bullosa afflicts infants through to childhood. Painful blisters arise from this condition (said to be caused by a missing protein) and that means painful baths, painful dressings, painful eating and swallowing. When I have a difficult workout or think I have a difficult existence I think of these children and what they endure to get through their day. Please help send support to finding an end to EB. One percent of the population will run the marathon. I'm focused on zero percent of children dealing with this. My race mantra (besides: "C'mon, God, 'just. like. we. practiced.") is: "EB is BS."