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Catie Corken's Fundraiser:

Team JGSF Twin Cities Marathon

Catie's Photo
Catie's Photo
Catie's Photo
Catie Corken

THE STORY:

My name is Catie, aka Miss Corken, preschool teacher at St. Bart’s in Wayzata.  I am running this years Twin Cities marathon for my darling student, Layla Nick.  I had the privilege of meeting the Nick family my first year of teaching when their oldest daughter Lily was in my class.  Fast forward a year and in walks Layla, a spunky 3 year old who puts a smile on my face every day.  In one year, I mastered flying the red fairy across her favorite book, learned more about dragons than I ever thought possible and finally found a way to crack the classic Layla look.  She is the kind of girl who in complete silence will look at me and yell, “Miss Corken, I LOVE butterflies” :) She is truly special and has a love of life that is absolutely contagious.  It’s amazing what a 4 year old can teach you. 

On October 6, I will be running not only for Layla, but also to support the Jackson Gabriel Silver Foundation (JGSF), a nonprofit organization founded by Alex and Jamie Silver.  Their son, Jackson, like Layla, was born with Epidermolysis Bullosa, EB for short.  It is a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth.  This foundation funds scientific research with the goal of curing and treating this devastating disease. While I didn’t know her at the time, Layla was born missing half the skin on her legs, feet, wrists and elbows.  It was a tough journey for the Nicks, but now Layla is four and doing great! 

A child who suffers from EB lacks a critical protein that binds his or her layers of skin together. Imagine your skin being as fragile as a butterfly's wings. Imagine every movement you make causing your skin to shear off your body.

Curing a rare disease is always a race against the clock, but curing EB is a race against a clock moving at warp speed.  While Layla’s case is not as severe, children like Jackson have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his shortened life. 

There is tremendously encouraging work underway, and a cure for EB is within reach. To date, JGSF has raised over $1 million and has helped to fund key research projects at leading institutions including Stanford, the University of Minnesota and USC.   Several human clinical trials are expected to begin this year. 

In a few short weeks, I will be running for Layla and every person with EB.  I am running to help find a cure!  Please help me in this journey.  Thank you for your support!   

Lots of love, Catie

 

JACKSON GABRIEL SILVER FOUNDATION INC wrote -

Join Team JGSF at the 2013 Twin Cities Marathon Weekend and help us raise more money than ever before.

Click the big DONATE button or go one step further and help us fundraise by clicking the CREATE YOUR FUNDRAISER button. You'll get your own fundraising page to share with all your amazing family and friends.

The Jackson Gabriel Silver Foundation is a nonprofit organization founded with the mission to treat, cure, and end Epidermolysis Bullosa ("EB").  EB is a devastating and life-threatening skin condition that affects children from birth.  Individuals with EB lack a critical protein that binds the layers of skin together.  Without this protein, skin tears apart, blisters, and shears off, leading to severe pain, disfigurement and wounds that never heal.  

The Jackson Gabriel Silver Foundation ("JGSF") is aggressively funding research and supporting the tremendously encouraging and viable scientific work taking place at leading institutions around the country, including Stanford, USC, and the University of Minnesota.  In three short years, JGSF has raised over $1 million and has made a significant difference in the field of EB research and the pursuit of a cure.  

Thank you all for your support in continuing our mission!

Click here to visit our official website.

DONATE

To This Fundraiser

$2,095

MONEY RAISED
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  • Anonymous

    $50

  • Jeff and Karen Overly

    $100

  • Anonymous

    $25

  • Lego Family

    $25

  • Evan Phillips of Phillips Records

    $25

  • Kaley and Scot

    $25

  • Matt & Alene Corken

    $100

  • Lynn and Mark Eckerline

    $100

  • Keith and Kris Johnson

    $50

  • Megan Hoxmeier

    $15

  • John and Kim Zitur

    $50

  • Bob & Beth Sparrow

    $100

  • Laurie & Tom Hennen

    $50

  • Deb Anderson

    $50

  • The Wehmann Boys

    $150

  • Tom & Becky Olson

    $25

  • Lylah McClenachan

    $25

  • Brandon and Sharon McCartney

    $25

  • Gratton Family

    $50

  • Marc & Lori Agar and family

    $100

  • The DeMarte's

    $50

  • Hunter and Olivia Boyd

    $100

  • Al Witry

    $100

  • MJ and Dee Jennings

    $100

  • Connor Moore

    $20

  • Trish and Andrew Kinney

    $25

  • Lake West Chiropractic & Natural Health

    $250

  • Emily Corken

    $25

  • Showalter Family

     

  • Leah Corken

    $25

  • The Cash Family

    $30

  • Nora Benson

     

  • Blake

    $35

  • Mrs. A

    $25

  • Rose McNeill

    $20

  • The O'Keeffe & Shafers

    $50

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210% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $24,192 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Todd Setsma

Amount Raised

$11,435

Fundraiser Title

Catie Corken

Amount Raised

$2,095

 

210% Raised of $1,000 Goal

Fundraiser Title

Jennifer Nick

Amount Raised

$1,875

 

188% Raised of $1,000 Goal

Fundraiser Title

Sarah Plese

Amount Raised

$1,465

Fundraiser Title

Sarah Pollock

Amount Raised

$1,305

Fundraiser Title

Jen Baldwin

Amount Raised

$1,226

 

123% Raised of $1,000 Goal

Fundraiser Title

Marti Lindstrom

Amount Raised

$1,185

 

119% Raised of $1,000 Goal

Fundraiser Title

Kerry Colpitts

Amount Raised

$1,185

 

119% Raised of $1,000 Goal

Donor Comments

The O'Keeffe & Shafers

The O'Keeffe & Shafers

DONATION: $50

4 years ago

Mrs. A

Mrs. A

DONATION: $25

4 years ago

Rose McNeill

Rose McNeill

DONATION: $20

4 years ago

Blake

Blake

DONATION: $35

RUN LIKE YOU STOLE SOMETHING!!! 4 years ago

Nora Benson

Nora Benson

4 years ago

The Cash Family

The Cash Family

DONATION: $30

Good luck Catie!! We will be thinking about you on Saturday! 4 years ago

Leah Corken

Leah Corken

DONATION: $25

4 years ago

Showalter Family

Showalter Family

4 years ago

Emily Corken

Emily Corken

DONATION: $25

4 years ago

Lake West Chiropractic & Natural Health

Lake West Chiropractic & Natural Health

DONATION: $250

4 years ago