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Jennifer Nick's Fundraiser:

Team JGSF Twin Cities Marathon

Jennifer's Photo
Jennifer's Photo
Jennifer's Photo
Jennifer Nick

THE STORY:

Why am I running?

I am running for my daughter Layla.  She was born on January 20, 2009 missing half the skin on her legs and feet, her wrists and her elbows.  Hours after her birth we heard the words Epidermolysis Bullosa and our world has never been the same.  Layla spent the first year of her life with her entire body wrapped in bandages, being carried around on a pillow and enduring 2 to 3 hour daily and painful dressing changes.  She is now 4 and thriving.  But sadly, we are the lucky ones.  Layla has taught me more about life, about myself and about GOD than I could have ever imaged.  She has taught me what it means to be strong, to be brave and to continue on no matter what pain there may be - everything I will need to get through  training for a marathon.

I am running for Jameson - a beautiful butterfly angel I never got to meet here on Earth because EB took his life way at 7.5 months of age.  Even though I never met Jameson, I could not love him more.  His life impacted so many and without him, I would have never met the Setsma family and his amazing mother, Melisa.  Not a day goes by that I do not think of her.  Even though I see her once a year (if I am lucky) I feel like she is right next to me.  She has also taught me what it means to be strong, to be brave and to continue on no matter what pain there may be - everything I will need to get through running a marathon.  An added bonus is I get to run with Jameson's daddy Todd!!  So blessed to hopefully cross the finish line with him!

I am running for every baby, child, adult who has every type of EB!  I am running for a CURE!  I am running so that everyone born with EB can LIVE a LIFE, not just SURVIVE it.  I am running so that everyone born with EB will no longer experience PAIN.  I am running so that there are NO MORE FUNERALS because of EB!!!!!

I will be running with Layla and Jameson's names on my number, your support at my back and Todd and GOD by my side.  THANK YOU!!!!

HERE IS MORE INFO ON JGSF!

The Jackson Gabriel Silver Foundation is a nonprofit organization founded with the mission to treat, cure, and end Epidermolysis Bullosa ("EB").  EB is a devastating and life-threatening skin condition that affects children from birth.  Individuals with EB lack a critical protein that binds the layers of skin together.  Without this protein, skin tears apart, blisters, and shears off, leading to severe pain, disfigurement and wounds that never heal.  

The Jackson Gabriel Silver Foundation ("JGSF") is aggressively funding research and supporting the tremendously encouraging and viable scientific work taking place at leading institutions around the country, including Stanford, USC, and the University of Minnesota.  In three short years, JGSF has raised over $1 million and has made a significant difference in the field of EB research and the pursuit of a cure.  

Thank you all for your support in continuing our mission!  Your donation is 100% tax deductible

Click here to visit our official website.

DONATE

To This Fundraiser

$1,875

MONEY RAISED
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  • Erin Loechler

    $15

  • Carin Irwin

    $25

  • Steve and Judy

     

  • Vicki Meyer

    $25

  • Frank Sterzen

     

  • Richard and Jan Bates

     

  • The Tagel Clan

    $25

  • Patrick & Lisa Reiter

    $25

  • Karban Family

    $40

  • Tim and Pat Petzold

    $100

  • Benson Family

     

  • Mary Reid

    $50

  • Barb & Joe Kaner

    $50

  • David, Jennifer, Nathan, Josh & Gabi Hartung-Weber

    $25

  • Wendy Werner

    $50

  • Lenehan Family

    $50

  • Fran Hurlburt

    $150

  • Michelle and Ben Harren

    $25

  • Maynard and Rita Miesen

    $25

  • Anymous

    $100

  • The Langevins

    $100

  • Martha and Joe Hartung

    $100

  • Anonymous

    $100

  • Tom & Jill Weber

    $50

  • Showalter Family

     

  • Max,Karen,Courtney and Andrew

    $50

  • The Cash Family

    $30

  • Sheila Adams

    $50

  • The Nyhagen Boys (& mom!)

     

  • Buffs

    $75

  • Worner Family

    $50

  • The O'Keeffe & Shafers

    $50

  • The Sinnings

    $50

  • Freeland family

    $100

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188% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $24,192 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Todd Setsma

Amount Raised

$11,435

Fundraiser Title

Catie Corken

Amount Raised

$2,095

 

210% Raised of $1,000 Goal

Fundraiser Title

Jennifer Nick

Amount Raised

$1,875

 

188% Raised of $1,000 Goal

Fundraiser Title

Sarah Plese

Amount Raised

$1,465

Fundraiser Title

Sarah Liston

Amount Raised

$1,305

Fundraiser Title

Jen Baldwin

Amount Raised

$1,226

 

123% Raised of $1,000 Goal

Fundraiser Title

Marti Lindstrom

Amount Raised

$1,185

 

119% Raised of $1,000 Goal

Fundraiser Title

Kerry Colpitts

Amount Raised

$1,185

 

119% Raised of $1,000 Goal

Donor Comments

Freeland family

Freeland family

DONATION: $100

4 years ago

The Sinnings

The Sinnings

DONATION: $50

Thinking of you...you are awesome!! 4 years ago

The O'Keeffe & Shafers

The O'Keeffe & Shafers

DONATION: $50

4 years ago

Worner Family

Worner Family

DONATION: $50

4 years ago

Buffs

Buffs

DONATION: $75

Layla layla she's our girl!! 4 years ago

The Nyhagen Boys (& mom!)

The Nyhagen Boys (& mom!)

4 years ago

Sheila Adams

Sheila Adams

DONATION: $50

You are something else Jen! Good Luck - I will be thinking of you!!!! 4 years ago

The Cash Family

The Cash Family

DONATION: $30

Good luck Jen! You are an amazing mom! We will be thinking about you on Saturday. You have got this! 4 years ago

Max,Karen,Courtney and Andrew

Max,Karen,Courtney and Andrew

DONATION: $50

4 years ago

Showalter Family

Showalter Family

4 years ago