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Jackie and Mark Buechele's Fundraiser:

Team Klara and Maddie

Jackie  and Mark's Photo

BENEFITING: The RYR-1 Foundation

ORGANIZER: Emily and Darren

EVENT DATE: May 14, 2016

Jackie and Mark Buechele

THE STORY:

Emily and Darren Pedersen wrote -

We are a team made up of friends and family, with one purpose....to find a cure for Klara and Maddie's muscle disorder. Klara and Maddie are both diagnosed with a form of RYR1-RM, a congenital muscle disorder, which there is no treatment or cure for. They have faced struggles, overcome obstacles, had to deal with unimaginable things and yet, they still have a smile on their face. They are stronger and braver than any other child we know. They miss out on so much in life because of doctors appts, therapy, hospital admissions or because it is cold season. They miss out on things because don't have the strength to do it or because it isn't wheelchair accessible. Yet, with all that adversity, they continue to fight. They continue to try. These two little girls are our motivation. We can walk, run, skip with ease. They cannot. So this team comes together to raise money for research to find a cure for Klara and Maddie. We run today because we can. We run today, so they can run tomorrow.

DONATE

To This Fundraiser

$150

MONEY RAISED
  • John and Mary Lou Blady

    $50

  • Mark and Jackie

     

  • Barbara and Mark Buechele

    $50

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Fundraise for this Campaign

The Team: $20,043 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Jackie & Scott Anderman

Amount Raised

$5,865

 

147% Raised of $4,000 Goal

Fundraiser Title

Emily and Darren Pedersen

Amount Raised

$4,808

 

48% Raised of $10,000 Goal

Fundraiser Title

John House

Amount Raised

$2,525

Fundraiser Title

Lillian Pedersen

Amount Raised

$2,390

Fundraiser Title

Michelle Cammarata

Amount Raised

$1,375

Fundraiser Title

Justine Hall

Amount Raised

$1,105

Fundraiser Title

Alexis Breining

Amount Raised

$250

Fundraiser Title

Solina Feliciano-Gonnion

Amount Raised

$250

Donor Comments

Barbara and Mark Buechele

Barbara and Mark Buechele

DONATION: $50

For Klara 3 years ago

Mark and Jackie

Mark and Jackie

3 years ago

John and Mary Lou Blady

John and Mary Lou Blady

DONATION: $50

3 years ago